Welcome to TIMS. I am very sorry your family is having to deal with this MonSter, as we sometimes refer to this disease. You are right... this is a strong community and I noticed that your first post got somehow lost in the shuffle and so after reaching out, you obviously never got any replies, unless by PM. That is too bad that we all missed your post.
It is so difficult to predict where this disease will take us and everyone has different things that we deal with as far as symptoms & emotions. Emotions are often very much affected by MS. I can in some way understand what you are feeling in regards to your parents dealing with this situation. My parents dealt with a sick son (leukemia), and had to bury their 19 yo son. Parents should never out-live their children - there is no greater pain, I'm sure. I am sure that as difficult as this is for your parents to deal with sis's condition, they would have it no other way. I am happy to hear that you/or they have made contact with the Society & I sincerely hope that they get some home care or some form of assistance. Is your sister on medication to help with depression? If not, that could be beneficial.... I was referred to a Psychologist by my neurologist when I was first diagnosed. This was done so that I had someone to go to if I was experiencing difficulty coping. I sat down with this woman 1 time, 5 years ago when I was dx'd, but she is a member of my "team", should I ever feel I need that sort of help. It may be something you may consider checking into, b/c she obviously needs help coming to terms with her dx, and may even be helpful for your folks in coming to terms with what is best for them and their ill daughter?? Not sure what else to offer. It sounds like her procedure has not been the answer either? I can say this - positive attitude is the best thing while dealing with almost anything in life and it sounds like sis is not really in that state of mind. That not only makes it hard for her to cope, but it makes it most difficult for all of the family to cope. I hope you find some help & you are so right to be concerned about your senior parents - they deserve so much more at their age. Take care & all the best in your search for help.