Calling all caregivers and family!!!!!!!!!!!

For questions on how to support loved ones with MS.

Re: Calling all caregivers and family!!!!!!!!!!!

Postby Choupinette » Mon Jun 30, 2014 10:03 am

Well, my husband has PMS and has been hospitalized now for about 4 years. He lies on his back all day, alone in his room, unable to move except his left arm and hand. He is starting to have cognitive problems (hallucinations, confusions) so now after seeing his body going, I'm looking at his mind going. He has panic attacks because he is aware of it. He has only me and I visit him every day. Needless to say, my life has been focused on being a caregiver for oh, what, 15-18 years now? I could tell you all the stages I've gone through, and now it is mainly acceptance, or perhaps just fatigue? ;)

So hold on everyone, the road is long and hard, think "marathon". And the one, absolutely primordial thing to do, is to take care of yourself. Personally, I've let my health deteriorate a bit too much and now I regret it. We caregivers are always going "the extra mile", the mile that will end up hurting us badly. Just saying. And as for the abusive attitude, it is not to be tolerated in any way. If Jason nor your son don't want to see a therapist, yes, it's a good idea to go by yourself. But the situation has to improve otherwise you will lose your health and something bad will happen. As the saying goes, you have to take care of yourself in order to take care of others!

I wish you and your family the best.
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