Suzie, I am glad that you asked this question. However, all I can think of are the things not
For those interested parties, my don'ts:
1.Don't get a pained look on your face as you survey my, now crippled, body. [No matter that in the good old days we used to play 4 sets of tennis with ease]. The troubled, pained look is my biggest pet peeve.
2. Don't stop calling just because I "don't get around much anymore"[hey that's a song!] I am still a human being trapped under all these spasms and contortions, and that means I still need human contact.
3. Do not engage in senseless and cruel gossip about my condition.
Case in point: Occasionally, one of my old friends will call to "get the dirt" on my current state of ms, then will go out to coffee with the rest of my old friends, and even people who don't know me, and share all the gory details.
**I can just hear the "oh, no's" and the "no....really??" at Starbucks where we used to get together each morning[b/4 ms]
And I make sure now to only share info that I would feel free to broadcast over a loudspeaker at the next Timberwolves game.
[In other words...very little]
Don't intend to sound so cynical--just been burned badly in the past.
[weird stares at the grocery stores]