I am SO gald to see that anyone has broached this subject and of course, it seems one thing leads to another, giving me pause to think.
My father would NOT seek further testing, and of course, back in "the day" not near as much was known, nor available to people. So many of my issues and problems, mirrored his over time. Now, I have persued those issues over time, many were dismissed or attributed to Lupus for a long time. Now there is a DNA test for Lupus and I am not positive for that!! Years later, with great vengeance, my life was severely and abruptly halted with the worst symptoms. Finally, after much testing, MRI's and spinal taps...an answer (diagnosis); I have/and have had for many years, MS (boo, but to those who doubted what was going on and were mean about it...hope you rethink what you say about and do to people facing disability). The entire family is fairly convinced, that dad actually had MS as well.
The other interesting thopught I took from this was the post mentioning the son with a coarctation. My dear granddaughter was born and spent days in NICU with that same problem. She went home with follow-up care with a pediatric cardiologist. She passed away the day after her 6 month check-up. It was quick, just as the hospital staff described it could happen from that condition. We had no other "heart links" in the family, nor in my son-in-laws family. You can imagine how devastating that event was and how many questions it has left, especially in regards to future children for them. Truthfully, how many things might be attributed to actual vessel irregularities? Worth a look-see or research of some type.
I am so thankful for this forum.