tld723 wrote:I've also been tested extensively for Lyme Disease, blood test as well as Western Blot test. My DR and I were really hoping it was the culprit, to no avail, not to mention we've ruled out every other disease.
Were you tested at IGENEX labs in California? If you were tested at Quest or LABCorp or similar CDC affiliated lab, you are at a high risk for a "False Negative"! ELISA and Western Blot tests at those labs do not check bands 31 and 34 which are the most specific bands for borellia. Igenex operates under the ILADS (International Lyme and Associated Diseases) group criteria for testing for Lyme. They check not only according to CDC criteria, but they also check "reserved" bands 31 and 34.
For ACCURATE testing, you MUST be tested at IGENEX. I can't stress it enough!!!
Also remember....Lyme hides and many people's immune systems get so compromised by the bug that they can't generate the appropriate antibodies, or enough of them, to show up on the normal ELISA or WB.
Before being tested at IGENEX, I highly encourage you to try a 4 - 8 week regiment of Samento TOA-Free Cat's Claw (Google it), or a 4 week course of Doxycycline (100mg/2xday) to see if you Herx (i.e. Feel worse due to bacteria being killed off in your system).....THEN get tested. You'll need the IgM and IgG Lyme Panels offered by Igenex....it will cost you out of pocket $200 - 250 as Igenex doesn't deal with Insurance companies.
Wishing you the best.