sou wrote: Are there any rehabilitation success stories out there? I hate when I hear about "realistic expectations". What is a realistic expectation? So far I have been promised everything and have been given nearly nothing. I can't afford yet another failure story, economically or emotionally.
Rehab can work on three things:
-build up your existing ability to compensate for lost function
-develop new ability if the potential is there for it
-learn work-arounds to compensate for lost ability.
So in rehabbing my leg, the approach includes:
-strengthening surrounding unaffected muscles
-exercise using the weak muscles, so that if they can recover function, they have the option to do so
-bring a walking stick when I go hiking
Will rehab help you?
Heck if I know. I can say that my mostly-homegrown rehab program (some good help from a PT at the outset) has resulted in significant improvements. I still have a wonky leg, but it can do way more than it could 1.5 years ago. [I do not think overlap with remission is a factor. I'm counting my 'rehab' progress from starting about 6 months post-remission. And I have a good leg to serve as a control to rule out simple deconditioning.]
Your results will depend on both your body (how much room for improvement is there) and your rehab team (do they know what they are doing.)
Professionals are helpful when a)you need ideas on how to do the rehab or b) you need specialized equipment/assistance to carry it out. Professional evaluation can also help you see and understand problems you might not be able to detect on your own. [My PT was good for the ideas and evaluation departments. But I took it from there, because the actual program for me is very low tech and do-it-yourself.]
Professional help can also be good for getting very targeted in your efforts.
That said, you are the one inside your body, and I've also experienced professional 'help' that did more harm than good. So it can go both ways.
You really have to take charge and take responsibility. You hire people to work for you on this project. Ditch the lousy ones ASAP, and with luck the better ones will work their way out of a job.