Vhoenecke wrote:This sounds weird but I describe my fatigue as a whoosh that goes over my body. I feel like I am spiralling down, down, down. When I get up after a night's sleep it feels like I haven't been to bed in 2 weeks. I think it is because the iron in our brain does not allow us to get into REM sleep stage. This is the rest stage of sleep. I have found that IBT has helped my fatigue.
I have discovered that in order to get somewhat decent sleep that I need to have my bedroom as near to silent as possible. I have a battery powered clock which makes an audible clicking sound. The sound is negligible except for when I hang it on the wall (its normal position). When it's hanging, the sound is louder. For several years (5-6) I was able to ignore it. However, this became increasingly difficult. One night when it was particularly annoying, I got up and took the battery out of the thing. Afterwards, I had the best sleep that I had had in months. My dreams were more vivid and I actually felt clearer headed in the morning.
The moral of my story is that sometimes it is the simple things that we easily overlook which prevent us from getting a decent night's sleep. My right foot has chronic neuropathic pain and sometimes it can take an hour or more to fall asleep. Add to that the ticking clock and it was much worse.
In keeping with the theme of this thread, this is what MS fatigue means to me. I have several friends that know I have MS and ask me how I'm doing. If I say that I've been really tired all the time, I typically get a response back that they are tired too. I know that they cannot understand an "MS tired" as they have never experienced it. As such, this is my analogy. When I was better fit I used to ski quite a bit (my favorite runs were the steep double diamond runs that required turning down the fall line, oh, and any resemblance of powder when we would get it). The first day of the season always wore me out. I would ski as many runs as possible to maximize my (run)/(lift ticket dollar) ratio and use muscles that I hadn't used all summer and fall. By the end of the day, I could barely walk and would be unsteady on my feet and everything from my back down to my feet ached. It was a good ache and I soon bounced back and subsequent ski trips were not as tiring. However, with MS, I now feel like I've gone on that first ski trip of the season almost every day.