eric593 wrote:I have had MS for over two decades. I've frequented forums on and off for the past 10 years. In all my reading, I have never seen this cold hands and feet complained of or listed as general and common symptoms of MS. Until CCSVI and the common occurrence of "liberated" patients feeling warmth suddenly in their hands and feet, that is. I can get that if you have suddenly increased blood flow, you might feel a surge of warmth in your extremities. But that's different than having chronically cold hands/feet to begin with. You can have increased warmth without having coldness to begin with.
Personally, I only developed cold hands and feet (mostly feet) in the past 6 months or so, I surmise due to lack of exercise and movement during this time and not from congenitally twisted veins.
So I wanted to put it out to the forum and ask: do YOU have cold hands and feet and do you relate it to your MS? If yes, how long has it gone on for (in terms of your MS history)?
I just want to get a sense whether cold hands and feet really are common complaints in MS and I somehow have missed noticing that in all my years of reading about MS and people with MS.
Causes according to Mayo, although I suggest reading the whole link instead:
**Diseases - Scleroderma, RA, Lupus, Sjogren's, diseases of the arteries, thyroid conditions
**Carpal Tunnel Syndrome (I have that - from HNPP)
**Repetitive Trauma (like from piano & typing - I'm a pianist and secretary - HNPP again)
**Smoking (I used to)
**Medications (like beta blockers & estrogen - I take those)
gymbuff wrote:Hi Shye
Is there a connection between Raynaud's and CCSVI? My daughter was diagnosed with Raynauds years ago and the tips of her fingers are always freezing cold and discolored.
Raynaud's syndrome, or "Secondary Raynaud's", occurs secondary to a wide variety of other conditions. Secondary Raynaud's has a number of associations:
Connective tissue disorders:
systemic lupus erythematosus
mixed connective tissue disease
cold agglutinin disease
thoracic outlet syndrome
cytotoxic drugs - particularly chemotherapeutics and most especially bleomycin
anthrax vaccines whose primary ingredient is the Anthrax Protective Antigen
jobs involving vibration, particularly drilling
exposure to vinyl chloride, mercury
exposure to the cold (e.g. by working packing frozen food)
reflex sympathetic dystrophy
carpal tunnel syndrome
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