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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

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Postby LR1234 » Mon May 10, 2010 9:10 am

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Last edited by LR1234 on Tue Mar 06, 2012 1:49 am, edited 1 time in total.
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Postby msgator » Mon May 10, 2010 11:02 am

I have several friends that had IVF, but none of them have MS. Sorry.

I have had two successful pregnancies since my diagnosis. Felt fantastic during both of them and never had the post pregnancy flare up, but i nursed for 10 mos with my first and 13 mos with my second. Just lost a third pregnancy at 14.5 weeks in, did not have an autopsy done but the standard pathology they did showed nothing. So of course i am now wondering if there were venous malformations.

Good Luck!

Ann
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Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
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Postby LR1234 » Mon May 10, 2010 11:16 am

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Postby msgator » Mon May 10, 2010 6:08 pm

There are studies that show the benefit of nursing. It must have something to do with the hormones that seem to be helpful. I chose to nurse for a long time before the benefits were shown and would have nursed my daughter longer if the docs didn't want me back on meds. (I had been on Avonex before my first pregnancy, which you have to stop taking for 3 mos before even trying and then it took me 8 cycles to get pregnant which for me was almost a year). Between the two pregnancies and now I take copaxone, which you can stay on until you get pregnant, and the breastfeeding info came out around that pregnancy so the doctor just told me to tell him when I had weaned my son and he would get me back on the meds.

I guess that answers your question about my diagnosis and pregnancy. I was diagnosed at age 24, first sought medical help for symptoms at 21 and had my first child at 29 my second at 33. I am now 35.

I have relapsing remitting MS. Although I am beginning to wonder if I am heading into secondary progressive as i am never symptom free. Compared to what I read here though, I can't complain. I don't have and never have had fatigue, brain fog or other cog issues. (knock on wood) Two episodes of diploplia (double vision) which resolved completely. (both prior to kids) I can't run anymore, I always hold hand rails when going up and down stairs and all my physical probs are in my right side (foot drop, fine motor in my right hand, constant pins in needles in my right calf) except the bladder which I don't think you can assign to a right or left side.

As to trying again....I had always thought of 35 as the latest I would have children, because of MS. Now I am not sure about sticking to the deadline. My husband has made having a venography/ballooning procedure a prerequisit for trying again and unfortunately things there are not moving as quickly as I would like them to. So I will just say, I haven't completely ruled it out.

If you can't get anyone to talk with you about IVF, I can try to connect you with one of my friends.

:)

Ann
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
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Postby msgator » Tue May 11, 2010 10:26 am

what is ttc?
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
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Postby ssmme » Fri May 14, 2010 3:21 pm

I used IVF with Lupron back in 2002 and had triplets after 34 weeks. They are typical 7 year olds now. I was not dx'd with ms until they were 4 years old in 2006 but my ms symptoms started to appear as soon as I delivered. It just took me a while to realize I needed to see a doctor(specialist) for it. Everyone including my gp, husband, mother, friends, etc. kept saying it was just trauma from the pregnancy and fatigue from caring for so many kids at once and on and on.

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Postby ssmme » Sun May 16, 2010 12:50 pm

GBG (Girl boy girl) is how the jargon goes. I needed help definitely!!! I found a young girl (20 years old) who helped me with the babies and she helped me around the house too. We became pretty good friends. She still comes over twice a week to be with the kids while I run errands.

I don't know what the odds are for conceiving multiples from IVF but its worth preparing for just in case.
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Postby gibbledygook » Mon May 17, 2010 5:31 am

L, you don't need to be on blood thinners that long. I was on warfarin for 3 months and then switched to low dose aspirin which is acceptable during pregnancy. 4 months after the stent operation I conceived. The obstetrician decided to add low molecular weight heparin for the pregnancy since thrombosis in pregnancy is a higher risk. And the low dose aspirin does not cover the requisite coagulation factors.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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