I have leg flexor spasticity interfering with my movement. I believe it just can't ever go away. Here is what I have tried:
- Physical therapy
- GABA powder/capsules
- CCSVI treatment (not for spasticity, I just mention it)
I haven't found anything really helping at all. Big words, useless drugs, inadequate and stupid physicians looking for their precious money in my muscles. The next steps:
- Leg amputation?
Botox only over my dead body! I am not giving a cent for yet another ineffective "drug" that may last for 1 month and improve my walking speed by 1 mm/hour (0.04 inches/hour). Ok, 2 mm/hour (0.08 inches/hour)!
So, what is next?
I have found that TENS could temporarily improve spasticity. (http://en.wikipedia.org/wiki/TENS
I am afraid of the word "temporarily". Do they mean some usec? Some msec? Some sec? Some hours? How temporarily?
In addition, swimming helps a lot, but this is because the water relaxes the muscles. I can't have a pocket swimming pool to do what my CNS ought to do. Does that help the CNS? Nope!
So anything practical? (Practical is an improvement of speed > 0.5 m/sec lasting for more than 12 months) If not, I demand all these super dooper hyper knowledgefull "doctors" I-make-money-from-your-pain-without-helping-you-at-all-do-you-like-my-new-car-asshole to stop making false claims to sell their product.
Any success stories so far?