So how do I feel, with the bmj report and that one-sided article in 'The Independent'?
Scared. I hate relapses. I don't want another. I don't want someone deciding that my DMD doesn't work, basing their decision on an economic model.
I logged on to this site to read a higher level of discussion. What I read was OMG STOP THESE DRUGS NOW!!!!! CLASS ACTION!!!
mrsenstitz wrote:Hi, you are right of course.
The problem is that for those of us who were diagnosed between 1998 and 2002, RRMS and the DMDs is an emotional subject.
The huge problem will be NICE. I can foresee huge problems ahead with getting testing and treatment past NICE. Perhaps I'm being pessimistic, but they are extremely conservative (small c).
MS is statistically, a rare disease.
NICE won't move until the full trial is completed in the US.
As I have two acquaintances who have had CCSVI angioplasty and stenting in Poland and who haven't had great results, this doesn't fill me with confidence that NICE will approve it.
This is very sad.
I have quite a lot of confidence that Campath will restore recently-diagnosed people to full health. A yearly infusion that stops MS dead in its tracks? Looks good.
Anyway, let's see what happens next.
very best wishes,
swynjones wrote:The major disease modifying therapies, Copaxone and the interferon treatments (Rebif, Betaserone, Avonex), make little claim on their ability to slow disease progression and reduce long-term disability.
jimmylegs wrote:mr, the name change did not work? you know you can always set up a completely new profile..
NHE wrote:Here in the US, at least, Avonex is marketed as slowing disabiltiy progression. It's just not terribly effective at it. Please refer to the figures in this post.
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