no drug treatments for spms

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no drug treatments for spms

Postby oscar » Fri Jun 04, 2010 2:34 am

I was told over a year ago that as i was now considered to be secondary progressive that their were no drug treatments available to me. I have been encouraged by developements by Dr Zamboni. Liberation is an option but is too expensive. My Neuro, who is not very helpful, seems to have the attitude that he could help when I was rrms but I will have to ride the storm now. Any ideas.
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Postby LR1234 » Fri Jun 04, 2010 3:24 am

Yes, I would look into the best bet diet, taking LDN (Low dose naltrexone) maybe the antibiotics protocol (see the board for antibiotics)

I would personally take supplements like Vitamin D3, B12, Omega 3's to help with blood flow and keeping the immune system in check.

There are may of us here battling with secondary progressive/RR and PPMS and what works for some might work for you too.

See also the CCSVI board
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Re: no drug treatments for spms

Postby tzootsi » Fri Jun 04, 2010 7:40 am

oscar wrote:I was told over a year ago that as i was now considered to be secondary progressive that their were no drug treatments available to me. I have been encouraged by developements by Dr Zamboni. Liberation is an option but is too expensive. My Neuro, who is not very helpful, seems to have the attitude that he could help when I was rrms but I will have to ride the storm now. Any ideas.


I totally agree with LR1234. Also, if you live in the USA, and have medical insurance, it WILL cover the CCSVI procedure (if it's billed as a venous blockage) if you can find an interventional radiologist who will work with you.
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Postby Loobie » Sat Jun 05, 2010 3:12 am

Leanne is right. I'm SP and although I've had the surgery, I'm also doing the rest of it. I'd get on LDN as soon as you can. Not saying it's the trick, but just part of doing all you can.
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