Urgent - I need advice.

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Urgent - I need advice.

Postby missym » Mon Jun 14, 2010 11:07 pm

My name is Mary, and my auntie has MS. I am currently raising money for her to fly to Poland, India, France, anywhere where she can have the surgery to hopefully correct it.
It has gotten to the point where she can't swallow her food most times - she has lost about 80 pounds in the past 10 months, it's been getting worse and worse. She is also sufferring immensly from the stress her children (teenagers) are causing for her.

I've been reading up on a surgery that can potentially cure MS, but it hasn't been legalized yet in the country I live in.. It seems to me that my country/the USA is more worried about the big drug companies losing big money if they legalize it, and as you can tell my auntie is in urgent need to have this operation..

I would like to know, where is someplace she can get this surgery performed? How much does it (generally) cost? Is there anybody who has a phone number or information to send to me about where to go? Is there anybody who has had this operation, and if so, what are your experiences?
I'm only 17, so I don't know much about this.. But I do know that if somebody doesn't do something to help her, she is going to die.

If anybody has information on where she can go/who to contact, I would appreciate it so much..
Thank you.
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Postby shye » Tue Jun 15, 2010 5:36 am

missym
First, go to the CCSVI forum here on TIMS--your info is there, but you will have to scroll thru a lot--
I will have more time this evening, and can then (probably faster than you, since I am familiar with the material) try to get some of the info to post here for you.

Also--this is not the best forum to get this info--it would be better for you to post your request on the CCSVI forum. (first forum listed under Treatment).
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Postby shye » Tue Jun 15, 2010 6:29 am

missym
Here is one place in the US--Albany--that is currently doing the procedure:

http://www.communitycare.com/Practices/ ... /CCSVI.asp
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Postby shye » Wed Jun 16, 2010 3:45 am

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Postby AWMA » Wed Jun 16, 2010 6:18 am

my hubby is going to Costa Rica with Passport Medical for $10,500 U.S.
all the information can be found at passportmedical.com
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Postby Wonderfulworld » Thu Jun 17, 2010 12:56 pm

Hi
I got an email from a clinic in Glasgow, Scotland (UK) doing the procedure and testing for about $8000 US dollars.
http://www.essentialhealthclinic.com/we ... ation.html
I don't know how good they are, but I am looking out to hear how others get on over the next year before committing to going ahead with it.
Hope you get somewhere soon for you auntie.
~~~~~~~~~~~~~~~
Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
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Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
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