Symptoms improve in evening?

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Symptoms improve in evening?

Postby tzootsi » Tue Jun 22, 2010 9:17 am

My wife has a mild case of ms, and one of her major symptoms is a heavy right leg. What is bizarre is that a few times a week, just before bed, her right leg gets much better - almost normal. This has been happening for years. I've done a lot of research on ms, and can't see any information on why this happens. Any thoughts?

Also - she had the CCSVI ballooning procedure done about 9 weeks ago, and several of her other symptoms have subsided.
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Postby questor » Tue Jun 22, 2010 2:30 pm

tzootsi,
My symptoms are at their mildest in the evening. This is also the time of day that I am least stressed, least busy, most relaxed, and least over-heated. The only symptom that was ever a problem at night after going to bed was lower-leg spasticity (this hardly ever happens now after the CCSVI treatment last September).

I've noticed the same thing about being on vacation (away from house chores and responsibilities, I no longer work). I still need rest breaks when I'm away, and I easily get overwhelmed if there is too much going on around me, but, in general, fatigue and cognitive-fog trouble me less when I am away from the home-routine in a restful location.

This wasn't true when I was still working. Body fatigue and lower-leg weakness were very unpleasant in the evening, after a full day's work.

--Tracy
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone
Former Ampyra User
Regular Botox Bladder Injections
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Postby sbr487 » Tue Jun 22, 2010 8:21 pm

that has mostly been the case with me (there are always days when this is an exception). I used to think this is mainly due to less heat in the evening ...
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Postby Loobie » Wed Jun 23, 2010 6:21 am

I, too, have the same phenomenon. I just think you're relaxed, it's usually cooler and the rest of it I just don't know, but I just got with it!
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Postby AJB86 » Wed Jun 23, 2010 2:38 pm

I made an account just to reply to this thread. I think I know exactly what you are talking about. You are the first person to describe what seems to happen to me in a way I feel is accurate

My symptoms seem to be generally better in the evening. i'm willing to admit that that is probably because it is cooler, i'm more relaxed, etc. But sometimes the improvement is so dramatic at that they feel as you say "almost normal". When it happens it is always around 10-11 oclock and it doesn't matter what I've been doing before that time I've also been scowering the net trying to find a way to haness this feeling.
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Postby LR1234 » Wed Jun 23, 2010 2:41 pm

My symptoms are also better at night but I suppose I feel better when I am sitting watching TV then running around doing chores in the day.
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Postby tzootsi » Thu Jun 24, 2010 6:57 am

It seems like this is a fairly common phenomenon. I don't think it's related to temperature, since it happens in both hot and cold weather. I don't think it's related to activity or stress either. When we mentioned this to my my wife's neuro, she just shrugged. Perhaps this is another key to solving the whole ms mystery?
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Postby AlmostClever » Thu Jun 24, 2010 10:41 am

Me too. (Not as much lately)

Sunlight? Ultraviolet Rays?
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby sbr487 » Thu Jun 24, 2010 11:17 am

tzootsi wrote:It seems like this is a fairly common phenomenon. I don't think it's related to temperature, since it happens in both hot and cold weather. I don't think it's related to activity or stress either. When we mentioned this to my my wife's neuro, she just shrugged. Perhaps this is another key to solving the whole ms mystery?


this is exactly what i posted in the other thread. Given that I have less symptoms in evenings, I still have worse symptoms in mornings even when weather is cool ...
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