This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi Eugene,
Welcome to ThisIsMS.




What you are describing seems consistent with what I have read about Lhermitte's though I don't have any personal experience with it myself.

NHE

"my" Lhermitte's are tingling/electric needles/difficult to describe in the extremities of little fingers; starting from tip and if I slowly bend more my chin to my thorax it goes up to my hand (same fingers)

Difficult to clearly describe; sorry if it sounds confusing

heya, sorry you're having a rough time with the docs

i have had l'hermitte's and it sound like that's what you've got. mine was from basically a whole slew of vitamin and mineral deficiencies, from being very very diet restricted for a lot of years. the main thing was b12. it took a while with lots of changes to my diet and lifestyle and i do have permanent damage it seems, but it's a long slow climb and i have not had l'hermitte's in ages now.

hth,

jimmylegs

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Sounds like it could be l'hermitte's. My wife had it until she was treated for CCSVI. For her, it was an electric shock feeling down her legs. You may or may not have a very mild case of ms, but it could be many other things. Jimmylegs suggestion of making some diet changes and taking some supplements sounds like the first thing to try.

This statement by Freedman is preposterous! Considering the side effects of Ifn-B (as well as the cost), one would want to be damn certain that they had MS before starting.


NHE

fight for the proper diagnosis...spinal tap? Mri? lesions?

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GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...

I agree with NHE.

These drugs are horrible and only to be taken if necessary - there is still no proof that they actually work. In fact the recent UK study is proving otherwise from what I gather.

A proper diagnosis is critical with MRI as a start.

Good luck,
Drury

shinbet2002

Look up MS drug trial "A Fiasco" - there are numerous other headlines but I have no idea about cutting and pasting or I would have put it on here for you.

I just want you to be informed and then you can form your own conclusions - that is when you know where you stand. Main thing is you have as much info as you can get because our experience is (our family that is) that you really have to be your own advocate.

Very best of luck.

Drury