Delayed/Miss Diagnosis of MS need advice

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Delayed/Miss Diagnosis of MS need advice

Postby joeymia » Sat Jul 03, 2010 1:48 pm

I believe I have been a victim of delayed or a miss diagnosis for MS. 3 years ago I visited a Neurologist because I was experience numbness on my back when I moved my neck down to my chin. I got the MRI done and a few weeks later the Neurologist calls me back and says I possibly have MS and wanted to get a follow up exam of my brain. I got that test done and the Radiologist report said my brain was perfect and so did the Neurologist. The Neurologist said I didn't have MS due to the clean brain scan and since I had only one lesion.

Last night I checked my old MRI and was surprised to find 2 lesions on my brain that were very clear. These lesions also appeared on my MRI 2 months ago which lead to my diagnosis this time.

I am so mad not sure what I should do. Since that MRI 3 years I developed 3 more lesions on my Spine and 2-4 others in my brain. I feel like if I was taking care of my body or was got on Copaxone there years ago I would not be in such bad shape. I could not sleep last thinking about this....

I don't understand how the radiologist missed the lesion. I was doing the test for possible MS there should be no way to miss it. My Neurologist probably just read the report and didn't take one look at the film.

What should I do? Obviously never going back to that doctors office. I feel like should seek out lawyer but I am afraid of being black listed by other doctors. Especially since I am trying to get tested/treated for CCSVI.
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Postby joeymia » Sat Jul 03, 2010 1:56 pm

This is the MRI from 2007

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Postby joeymia » Sat Jul 03, 2010 1:57 pm

This is the MRI 2010

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Postby joeymia » Sat Jul 03, 2010 2:03 pm

here is the lesion on my neck which was causing the numbness in 2007.

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Postby joeymia » Sat Jul 03, 2010 2:09 pm

enhanced 2007 mri

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Missed MRI Lesions

Postby Smilingface » Sat Jul 03, 2010 6:04 pm

I have a very similar story. Two neurologists from the same practice mis-read my MRI missing the two lesions on my C-spine. I failed to get the diagnosis of MS since I had no lesions. After 9 months, since my symptoms were worse I referred myself for a second opinion. The new neuro saw them right away and ordered a better quality MRI to get a better look.

In my case since I am PPMS, treatment wasn't such a big deal. Although I did try an antibiotic protocol immediately after diagnosis.

I was pretty upset at the time. But I finally decided it was just a mistake and that one doctor had probably just read the first one's report. Getting a lawyer would not change the fact that I had MS or help me in any way fight the disease. I never went back to the original doctor but have talked to him at MS meetings without ill feelings. It took me awhile to get over it!
Primary Progressive, Onset 10 years ago at age 42, diagnosis 6 years ago, Vit D, Chinese Herbs, Exercise, yoga. So far tried antibiotics, fumaric acid and 4AP. Currently participant in the FTY720/PPMS Trial.<br />
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