Tingling Driving Me Insane

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Tingling Driving Me Insane

Postby Squibbles » Tue Jul 27, 2010 8:39 am

Hi Peeps

Is there anyone that can tell me of a medication that they take to relieve tingling? I've had tingling in my feet for years but over the last month my hands have also joined in. It really is driving me mad, on my mind from when I wake up in the morning until last thing at night. And then when I wake up through the night it's there also - just need some respite from it...

Thanks

Chris
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Postby Loriyas » Tue Jul 27, 2010 8:43 am

I have used Neurontin, then later Lyrica. Both helped with the tingling. I no longer it so don't use either any more. But you could give it a try!
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Postby Squibbles » Tue Jul 27, 2010 8:46 am

Hi Loryias

Thanks for your reply...

Don't you get tingling anymore? Did it just stop or did it stop because of the drugs?

Chris
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Postby dlb » Tue Jul 27, 2010 8:49 am

Hi Chris,

I've only experienced tingling in my feet when I've had attacks but for years even prior to my diagnosis of MS, I've had the numbness & tingling in my hands. Mine happens while I'm lying down (feels like my hands & arms have lost circulation - like they have "fallen asleep"). This has become more prevalent over the years to the point where I was having really restless sleep. In December last year, I started Inclined Bed Therapy (IBT), and it has helped me incredibly. When CCSVI and compromised circulation became known & understood, it made sense to me to try this and I am still amazed at the difference it has made for me. I eased into it by raising the bed halfway at first so it didn't feel quite so strange! Hope it might help you too.
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Postby Squibbles » Tue Jul 27, 2010 8:55 am

Hi DLB

Thanks for your reply!

Yes, I've heard of inclined bed therapy - do you know how much you are supposed to incline the bed?

Not sure how my husband will react though (lol)!

Chris
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Postby dlb » Tue Jul 27, 2010 9:10 am

Hi Chris,

Check out the IBT thread for directions. We have a Queen size bed & my hubby used a 2x6 which is actually 5.5", not 6". He cut it to the length of our bed frame and then cut it lengthwise into a wedge shape (from 0 to the full width of the 2x6) & then adhered this to the ledge on the sides of the bed rails. Also added supports across the center (widthwise), where the supports were already in place. Hope that makes sense. It is easier if you have a bed with the coasters - Andrew explains how to do that on the IBT thread.

My husband was really enthusiastic when he read some info on the IBT thread because it just makes sense. He actually adapted better to it initially than I did! I noticed right away that he doesn't snore as much with IBT and I have also noticed that my allergies are much better now. I rarely wake up with stuffed up sinuses. What a bonus! But the biggest difference it has made for me is that I'm sleeping pretty much through the night & only once in awhile have to reposition my arms because of the tingling. I also have much less headaches & I notice when we are away from home & I have to sleep flat that I most often wake with a booming headache. It has made my life so much better & I'm so happy we gave it a try.
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Postby Loriyas » Tue Jul 27, 2010 11:50 am

Chris
The tingling stopped after I started the antibiotic protocol. I also do the Copaxone injection daily and also LDN. I don't know why it stopped or which if any of these caused it to stop. It just did and I am grateful!
Lori

BTW prior to starting the antibiotic protocol I was taking Neurontin. It helped with the tingling quite a bit. But when the Neurontin wore off and it was time to take another the tingling became worse. So all it did was lessen the tingling while I was taking it. Once I started the antibiotics it went away. Don't know but....
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Postby naychergirl » Thu Jul 29, 2010 10:39 am

Hi Chris,

I too have tingling from hell. What had started out as a tingling sensation now feels like pins and needles being stuck in my legs. It's constant from my knees down to my foot. I take neurontin. It helps, but it doesn't take the tingling away. And it does come back with a vengence if I'm late taking a dose.

I went to a vascular surgeon here in South Florida, and found out I have CCSVI. So, I figure, instead of taking more drugs, I'll just put a stop to all this nonsense and pain.
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Postby Squibbles » Thu Jul 29, 2010 11:39 pm

Hi Nacheygirl

I had the CCSVI treatment done in Poland in April and I have had absolutely no improvements from it - in fact, the tingling that is now in my hands constantly started about 2 months after I had the treatment done.

I just don't want people thinking that it will cure all. It may work for you - I hope it does - but it may not...

Chris
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Postby naychergirl » Fri Jul 30, 2010 4:09 am

Thanks Chris!

I'm sorry about your outcome, but maybe it will just take some tine to see results.

I am praying, alot, every day that the proceedure will heal me, or at least lessen the symptoms. I hate to be taking all this medicine.

What were/are your symptoms? My symptoms are on my right side. Drop foot, stiffness, tightness in my chest, ringing in the ears, etc.

I was told I have a blockage in my left juggular, and perhaps in the azygos. I'm being scheduled for and MRV.


I have been praying for everyone suffering from MS. And I will continue praying for all, you included. Keep the faith, don't give up!

Naychergirl
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Postby Zeureka » Mon Aug 02, 2010 3:22 pm

Hi, Naychergirl, Chris and others - so seems I'm welcome in the tingle club :wink:

I have this constant non-stop tingling in both hands and feet since 5 years now. Then, in addition numbness joined some of my toes and in some places underneath my feet over time (right foot worse)...also feel light numbness in my lower legs, just like wearing socks. But I walk normally.

CCSVI angioplasty of my both jugulars 2 months ago in Poland has not changed anything on those symptoms (only in start felt a bit less tingling in my hands but it now is again as before). But it had impact on my fatigue and bladder function8)

Just indeed to say that there are no miracles, but there are some other improvements. And with each person it is different. I also heard some people that had less tingling long-term. But not my case. As regards meds I had longer ago tried Lyrica and did not have much effect on reducing tingling and made me tired so had stopped.

I have no pain so decided - as long as no pain - to live my tingling life without additional meds. If something could cure/take away the underlying reason, I would take it, but if it just reduces minimal some of the symptoms and with side-effects, I prefer not to depend on another med for life.
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Postby Zeureka » Mon Aug 02, 2010 3:36 pm

Forgot to say that also do IBT. I sleep very well/deep - my impression of deeper sleep is another effect also of after-CCSVI-procedure.

In mornings, when wake up, the tingling then indeed a bit less (but not completely gone), but strangely then increases in intensity with time during day. So maybe should work in inclined bed position at my computer :lol:
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Postby naychergirl » Tue Aug 03, 2010 5:39 am

Zeureka,
What is IBT?
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Postby Zeureka » Tue Aug 03, 2010 6:14 am

naychergirl wrote:Zeureka,
What is IBT?
Sorry, indeed remember also in start did not understand :lol: = Inclined Bed Therapy = placing wooden blocks of 15 cm hight underneath the feet of the bed (at side of the head of bed, so you're inclined from head towards feet downwards). At least this is how my husband helped me to incline our bed and we enjoy it both! 8) At the beginning we started with 5 cm, the 10 for a few days to end up with 15 since in start is kind of funny feeling.
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Postby Squibbles » Tue Aug 03, 2010 6:18 am

Hi Naychergirl

Check out DLB's posts nearer the top of this thread...

Chris
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