This Is MS Multiple Sclerosis Community: Knowledge & Support

yw ep

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

NOTE - March 16, 2011: Heads up - I just bumped this thread after being gone for several months. I’m back (hope I can stay for awhile) and the contest is still on! (See rules at the beginning of the thread.)

Well, hello again, folks! Sorry for ignoring this thread for months, but I haven’t even lurked on an MS forum since I last posted here in August – just logged on and started trying to catch up a few days ago. For me, the last few months have been chock full o’ Real Life in all its tragedy, triumph & tedium, strain & stress, much involving family & friends. Agony & ecstasy. Death, disease, & dating. And did I mention stress? Plenty of stories, but I’ll save them for later.

So anyway, hope you’re still around, because the contest is still on. Join in, share your stories, share your weirdest symptoms, and bring your sense of humor!

Spasm Update – I’ve had 3 more since I posted on here.
**Aug 31 – felt like a single robot claw crawled its way down the outside edge of my leg (always the left one) from my thigh and then clamped itself into my shin bone (7 minutes, 7 on the pain scale).

**Dec 17 – single claw clamped onto the top of my foot for 5 min. (Picture being attacked by one of those arcade claw machines that grabs stuffed animals.)

**Dec 20 – felt claws into the entire outer left leg again, but not in the foot this time. (It left me screaming/swearing/crying for several minutes.)
**I’m due for another spasm soon – it’s been almost 3 months.

Even though they really don’t cause that much of a problem, I still wonder what’s going on, but:

***They don’t seem to involve muscles at all and don’t leave me sore, therefore they’re not cramps.
***I don’t have spasticity.
***My diet is full of magnesium rich foods.
***No point in taking meds – most of the spasms are months apart and last only 5-20 minutes with no after effects.

And...it’s nice to see you all again!

P.S. My friend the Latin scholar came up with this answer for me: “What you have is CTOAUSI Syndrome: Conterritus, Territus, Osimasticandus, Automachinae Ungulae-nervulus Spasmus ex Inferno (pronounced "cotausi" and commonly referred to as CT).”

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

..

Well, Bob, thanks but no thanks for the offer of new diseases - I don't need any more added to my list! Actually, that's a good site for quick information, tho. (I've already been dx'd with several of those anyway.)

In my case, I seldom (never?) blame any of my "symptoms" on MS, because none of them are exclusive to MS and I can always pin them on one of my many other medical conditions (most are not autoimmune ones), or even age. I keep track of dozens, including general ones like 'sleep', 'mood/emotions', 'pain', 'speech', 'vision', 'walking' just in case I can spot the beginning of a trend, and it's enabled me to head off problems that are due to foods or vitamins/supplements very quickly. In fact, I've often posted that if MS magically disappeared from the earth in the middle of the night I fear that I'd wake up in the morning and not even notice it was gone. And I have definite MS.

Interesting thing, tho, this spasm is the only thing in my life that has me stumped entirely, unless it's from MS. But it's one that doesn't seem to affect any MS patients but me.

Thanks for stopping by!

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

What! No more stories? Hmmm...tough crowd. I know! I could use a name for the 'symptom' (episode?) I described in the Natural Approach Forum yesterday: http://www.thisisms.com/ftopict-15912.html

Even though the Flaxseed Finger Episode came and went, it still deserves an appropriately outlandish and pretentious title. Don't forget...there will be prizes!

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)