NOTE - March 16, 2011: Heads up - I just bumped this thread after being gone for several months. I’m back (hope I can stay for awhile) and the contest is still on! (See rules at the beginning of the thread.)
Well, hello again, folks! Sorry for ignoring this thread for months, but I haven’t even lurked on an MS forum since I last posted here in August – just logged on and started trying to catch up a few days ago. For me, the last few months have been chock full o’ Real Life in all its tragedy, triumph & tedium, strain & stress, much involving family & friends. Agony & ecstasy. Death, disease, & dating. And did I mention stress? Plenty of stories, but I’ll save them for later.
So anyway, hope you’re still around, because the contest is still on. Join in, share your stories, share your weirdest symptoms, and bring your sense of humor!
Spasm Update – I’ve had 3 more since I posted on here.
**Aug 31 – felt like a single robot claw crawled its way down the outside edge of my leg (always the left one) from my thigh and then clamped itself into my shin bone (7 minutes, 7 on the pain scale).
**Dec 17 – single claw clamped onto the top of my foot for 5 min. (Picture being attacked by one of those arcade claw machines that grabs stuffed animals.)
**Dec 20 – felt claws into the entire outer left leg again, but not in the foot this time. (It left me screaming/swearing/crying for several minutes.)
**I’m due for another spasm soon – it’s been almost 3 months.
Even though they really don’t cause that much of a problem, I still wonder what’s going on, but:
***They don’t seem to involve muscles at all and don’t leave me sore, therefore they’re not cramps.
***I don’t have spasticity.
***My diet is full of magnesium rich foods.
***No point in taking meds – most of the spasms are months apart and last only 5-20 minutes with no after effects.
And...it’s nice to see you all again!
P.S. My friend the Latin scholar came up with this answer for me: “What you have is CTOAUSI Syndrome: Conterritus, Territus, Osimasticandus, Automachinae Ungulae-nervulus Spasmus ex Inferno (pronounced "cotausi" and commonly referred to as CT).”
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)