msmything wrote:I've always wondered is all of the testing, and then the procedure itself self pay?
I know for a while volunteeers were being recruited, but under this anount of publicity, I'm sure Dr. Zamboni has all the willing subjects he'll ever need in order to publish.
I actually had to pay for groceries using credit card, I haven't got much in the way of options there...
Pretty much all of the doctors doing the CCSVI screening/treatment have long lists of willing, paying patients. So none of them will have trouble recruiting volunteers for studies. CCSVI might hold great promise; but it doesn't have near the data backing it up that some of the other treatments have.
As for Tysabri, PML is a serious risk. But like Rainer said, you should talk with your doctor about this. Some people are real down on Tysabri, while others swear by it. It sounds like your MS is pretty aggressive, so something strong probably is in order. You could also ask about pre-screening for the JC virus, and if this helps lower the risk of taking Tysabri.
If you're still getting new lesions, it sounds like you've still got inflammation going on. Both HiCy and Campath seem to work best at this stage.
Whatever you decide, you mentioned that you're still holding on to your health insurance through work. I don't think anyone has gotten any of these treatments (stem cells, CCSVI, Campath off-label, HiCy) without insurance paying the bulk of the cost (though their might be a few millionaires out there).