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 Post subject: plz help
PostPosted: Mon Aug 23, 2010 12:53 am 
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Hi every1 i will try and b as quick as possible, Im female, 21 years old and suffer from pins and needles (for no reason), tingling sensations, lower back pain, memory loss, loss of sex drive, cramps weak feeling in arms and sometimes legs, dizziness, tiredness, and more but theses are the main ones, anyway i went to the gp who did some blood tests rules out other things and then tested my reflexes said they were fine and it wasnt ms, said it was stress (but i really aint stressed,) so i went to see another doctor who tested my reflexes and said they were fine so wouldnt be ms but she would refer me to a neurologist to give me peace of mind, so my question is - If your reflexes are tested and seem normal does that rule out ms? hope i get some replies or i will b at the doctors with stress lol xx


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PostPosted: Mon Aug 23, 2010 1:02 am 
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I've suffered from most of what you've put down here n I've been diagnosed wiv a mild form of MS, it's taken me three years to be diagnosed though, two MRI scans and a lumber puncture....


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PostPosted: Mon Aug 23, 2010 1:44 am 
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thats quite reassuring that someone experiences the same kinda thing and finally got to the bottom of it, did u have ur reflexes tested? and if so where they ok? as thats the bit thats making me unsure, xx


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PostPosted: Mon Aug 23, 2010 2:12 am 
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Of these symptoms I myself have only had tingling sensations and for a month or two earlier this year my short term memory was bad, if that helps. Doesn't really sound like MS to me. So I shouldn't get yourself worried. Besides, it looks as though the new CCSVI treatment would clear up smaller problems like these completely even if the worst did come to it. :)


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PostPosted: Mon Aug 23, 2010 8:43 am 
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i hope u r right, there is no point in me worrying anyway, thank u xx


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PostPosted: Mon Aug 23, 2010 11:03 am 
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Dinnae fash yersel. Is that old fashioned? That's what my gran would say anyway..


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PostPosted: Mon Aug 23, 2010 1:17 pm 
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I had these little scratch tests done where the doc would prick me wiv a tiny pin n hot n cold tests too. That was because my feelins n sensations were messed up. I didn't have my knees banged wiv the hammer or anythin like that...my symptoms throughout have been major pins n needles through various parts of my body, not feelin hot n cold things properly, bein massively tired, forgetful, moody, I get thius electric shock feelin down the back of my body when I lean my head forward...i cnt remeber the name for it but it begins wiv L....thats it I think....


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PostPosted: Mon Aug 23, 2010 1:52 pm 
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kirsty23 wrote:
I had these little scratch tests done where the doc would prick me wiv a tiny pin n hot n cold tests too. That was because my feelins n sensations were messed up. I didn't have my knees banged wiv the hammer or anythin like that...my symptoms throughout have been major pins n needles through various parts of my body, not feelin hot n cold things properly, bein massively tired, forgetful, moody, I get thius electric shock feelin down the back of my body when I lean my head forward...i cnt remeber the name for it but it begins wiv L....thats it I think....

L'Hermittes. I never had this mind you.


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PostPosted: Mon Aug 23, 2010 2:53 pm 
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hi ss, if you have not seen it already ,here's some general ms diagnostic info for you to read for starters:
http://www.mult-sclerosis.org/diagnosingms.html

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com


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PostPosted: Mon Aug 23, 2010 4:32 pm 
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scottishsarah wrote:
i hope u r right, there is no point in me worrying anyway, thank u xx


Worry is only intrest paid on something that hasnt happened! 8)

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The problem comes with the decision of weighing the unknown with the unknown.


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PostPosted: Sun Aug 29, 2010 2:47 pm 
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Dear Sarah,

you should definitely see a neurologist who is a specialist for MS as diagnosis of MS is often a difficult task and requires lots of experience. Imho. testing the reflexes might be ONE indicator in MS diagnosis but is not at all sufficient to rule out MS.

All the best
--Frank

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Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


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PostPosted: Tue Aug 31, 2010 3:36 pm 
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Hi Sarah,

I agree with Frank, you should definitely get check out by a neurologist, and one who is an MS specialist. I was just diagnosed, and my flare-up was numbness in my head/ears, stiff neck, buzzing feeling in my torso and legs, and pins/needles throughout my whole body. It took a LOT of testing (MRI's, evoke-potential tests, LP, ultrasounds, etc) to diagnose me, but my reflexes and standard neurological exam were all normal.

I started with a general neuro but now switched to one who specializes in MS. He said that I'm very lucky I was diagnosed because only one of the many MRI's showed my lesions and it was an MRI specifically ordered up by neurologists to diagnose MS. They did use contrast for the MRI and the lesions did not show in the MRI's without contrast. The first MRI I had in the ER looked normal and the doc came back and told me my symptoms were made up and I had Generalized Anxiety Disorder. 8O

Not trying to scare you but you should definitely push for all the tests you can get, just to be sure. Better to catch it now than down the road... this can be scary but you're not alone.


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 Post subject:
PostPosted: Wed Sep 01, 2010 12:38 pm 
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Thanks guys, i am waiting on an appointment with the neurologist at the moment, so shouldnt be to much longer. I have also been experiencing a buzzing sensation accross ma shoulders lately, which is completely new. When i went to the drs with all these symptoms they just put it down to stress which i know i am not suffering from so fingers crossed the neurologist can point me in the right direction lol xxx


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PostPosted: Wed Sep 01, 2010 12:42 pm 
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Best of luck to you! I hope it turns out to be nothing to worry about.


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PostPosted: Wed Sep 01, 2010 1:04 pm 
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thanks surfbird i hope so to, sure i will be ok whatever the outcome, just want to know whats up with me its the not knowing thats annoying me lol xx


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