Nobody is trying to highjack the forums. I very rarely post anywhere but in the Antibiotics forum or the Regimens one, which Arron started before the Antibiotics one. Nobody is trying to persuade anyone to do anything: everyone has the free will to choose to do anything they want. How many postings about antibiotics do you see in this section?
Of course David is keeping track of his patients, but if they don't post here, their data is confidential, they aren't part of a trial. I am his wife, but that is all, I am not employed by him to keep track of everyone. I wouldn't want to be, I have my own life to live, and now, thanks to the delightful Ram Sriram and Charles Stratton at Vanderbilt, (and David), I can do that.
David works part-time for the hospital and does private work in the afternoon. He does not charge for this because he doesn't like to mix money and health. He is lucky in that working for the NHS he can do this because an adequate income is earned before any private work. Some people seem not to appreciate this
One might attribute some of my improvements to doxycycline and its immunomodulatory powers, but why have I not degenerated when I stopped taking them, apart from small booster doses every two or three months?
Quote by Bromley
If I was to play Devil's advocate, I could say that I have only seen dramatic improvements reported by the wife of the Dr who has developed a theory about CPn / MS and anti-biotics! Sarah has reported dramatic improvements (I'm sure one of the postings said EDSS 8 to EDSS 2). Such improvements are almost unheard of, and Sarah reported dramatic improvements in her MRI scan. Again, if I was to play Devil's advocate, why isn't Sarah's neuro impressed with the results and reporting them?
I was EDSS 7, going on to 8, but I never quite got that bad. For years my MS was very mild, but I started to deteriorate in 1999, then more rapidly from summer, 2001. I saw the neurologist privately in May 2003. At this time I could still sign his cheque. I was deteriorating so rapidly by then, that when I had the MRI in August, and the last meeting with him, I had to walk along the corridor holding on to the wall. My right arm was useless. The diagnosis was secondary progressive, without a doubt looking at the scans. He told me to go home and allow the disease to take its course.
The sequence of scans were shown by the chief radiologist here, to one at Addenbrookes, our neurology centre, and this is part of his reply:
................. I did finally manage to show the MRIs to
Dr ******. He was surprised at the change between the earliest
(June 03) and latest (Sept 04) imaging. There are definitely lesions which
have disappeared between the 2 studies, and many of the lesions are smaller than before. In Dr ******'s experience this is unusual for MS lesions which usually accumulate over time, the older lesions showing as an area of volume loss.
The radiological changes seem to reflect the clinical course, and this
circumstantial evidence would seem to suggest that the treatment she had has helped.
I presume I am not under the care of 'my' neurologist any more, because I have had no contact with him for two years. I do know that he saw the second set of scans. He is an epilepsy specialist, apparently. His last words to me two years ago were that if I had a severe event, I could go to Addenbrookes to receive IV steroids within short notice. I haven't needed to. I have no idea why he isn't interested in the results. I can tell you something though, someone from somewhere else is. Can't say where, though. Trade secret!
If Arron thinks that the site as a whole is becoming too biased, then he is welcome to tell me.
Bromley, I hope you have a good time in Florida, you need the break.