Thank you, cheerleader. I'm greatly relieved to know they don't actually cut into the brain, only the veins outside the brain. Sounds like surgery to me. I didn't find much at all on histamine vasodilation under the CSSVI topic. Have you seen any mention of Dr Jonez, or the MS Clinic at St. Joseph Hospital?
CCSVI is not open surgery, it is an endovascular procedure utilizing angioplasty. The femoral vein is accessed with a tiny incision at the groin and a wire catheter is inserted thru the venous system to the point of blockage, where a balloon is utilized.
Yes, I've read about Dr. Jonez right here. HarryZ, an elder on this site, introduced me to Dr. Jonez's research. His wife, who passed from MS complications over a year ago, was treated with histamines. Search HarryZ as an author, and you'll get many hits on histamine treatments---http://www.thisisms.com/ftopicp-15110-jonez.html#15110
Not sure why you think your husband's veins were congenitally malformed. The risk of MS is known to be acquired around puberty. See "Psychosomatic origins and implications for pathophysiology" at:http://web.me.com/petergood1/MultipleSc ... /Home.html
Dr. Zamboni and a panel of vascular experts from 47 nations have classified CCSVI venous lesions as truncular venous malformations, which are congenital, and they grow as the body grow, experiencing a large growth spurt at puberty.
Here is Dr. B. B. Lee's paper on this topic:
Embryological background of truncular venous malformation in the extracranial venous pathways as the cause of chronic cerebrospinal venous insufficiency
http://www.fondazionehilarescere.org/pd ... 8-ANGY.pdf
And actually, my husband lost his peripheral vision completely as a child, no explanation from doctors. It was Dr. Dake at Stanford that surmised his venous malformations had probably been present when his optic nerve and disc were damaged by venous pressure on his drusen. I don't really "think" this stuff up....I read and ask the doctors what they think.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS