This Is MS Multiple Sclerosis Community: Knowledge & Support

Don't think this is a new topic, but I can't find a previous one to reply to (new member). I agree wholeheartedly with Dr Schelling's findings of low brain blood flow in MS, and Dr Zamboni's diagnosis of CSSVI, but his treatment seems incredibly drastic.

There once was a much safer way to increase brain blood flow—histamine diphosphate—a very effective and popular treatment in the U.S. during the 1940s and 50s. More than 3000 patients with MS and related disorders were treated between 1946 and 1959 at the MS Clinic of St. Joseph Hospital in Tacoma. Most of them improved, some quite dramatically. The Clinic's story and its treatment are described in "Histamine vasodilation—a forgotten effective treatment" on my site at:
http://web.me.com/petergood1/MultipleSc ... /Home.html

Elaine DeLack, a nurse in the Tacoma area, recently developed a histamine skin patch (called Prokarin) to deliver histamine safely:
http://www.elainedelack.com/

Seems a lot safer than brain surgery.

Peter Good
Multiple Sclerosis Studies
Autism Studies
LaPine, OR

Please pass the word, the Center for Vascular Awareness is presenting "CCSVI and Multiple Sclerosis Connecting the Dots" at the Egg in the Empire State Plaza, Albany NY on 11/10/2010 at 6:00pm.

This is an open forum and a very exciting meeting. Everyone is welcome, FREE of charge. Patients and healthcare workers are encouraged to attend! This will be a very important meeting, and more information can be found at www.vaware.org.

Speakers will include Michael W. Lenihan, MD., Michael Dake, MD., E. Marke Haacke, MD., Manish Mehta, MD., Michael and Kacey Quirk, and Dhianna Yezzi, who are patients treated for CCSVI.

Please contact Sharon Cillis at (518) 452-1048 or RSVP at rsvp@vaware.org. Please pass this information on to ANYONE who you think may want to attend!

Welcome. Peter--
ccsvi angioplasty is not brain surgery. It is an opening of the veins outside the cranium with balloon angioplasty.
Go to www.ccsvi.org for all of the facts. You're a bit off....
We've actually discussed vasodilation/histimine/prokarin etc. quite a bit on the CCSVI forums...you're posting in the general forum, and will get more dialogue going if you post on the specific forum for this topic.

It was my research into the endothelium and vasodilation which connected me to the doctors at Stanford, where my husband was the first tested and treated for CCSVI in the US.

Sadly, prokarin is not enough to open up a congenitally malformed jugular or azygos vein, and is only mildly effective for those with serious CCSVI.
welcome,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Do you have the paper Dr Schellings low blood flow

silver

I have his paper in hard copy only. His online book Multiple Sclerosis: The Image and Its Message is available to download at:
http://www.ms-info.net/ms_040504.pdf

I also recommend the excellent comparison of Schelling's views vs. Zamboni's at:
http://uprightdoctor.wordpress.com/zamb ... schelling/

pbg

Thank you, cheerleader. I'm greatly relieved to know they don't actually cut into the brain, only the veins outside the brain. Sounds like surgery to me. I didn't find much at all on histamine vasodilation under the CSSVI topic. Have you seen any mention of Dr Jonez, or the MS Clinic at St. Joseph Hospital?

Not sure why you think your husband's veins were congenitally malformed. The risk of MS is known to be acquired around puberty. See "Psychosomatic origins and implications for pathophysiology" at:
http://web.me.com/petergood1/MultipleSc ... /Home.html

cordially,

pbg

[/u]

They don't cut - it is angioplasty - they expand balloons inside the veins to try to make them follow 'standard path' (tho I know I'll get flamed for that description).

Yup if the baloon is inside the vein how does it get in?

CCSVI is not open surgery, it is an endovascular procedure utilizing angioplasty. The femoral vein is accessed with a tiny incision at the groin and a wire catheter is inserted thru the venous system to the point of blockage, where a balloon is utilized.

Yes, I've read about Dr. Jonez right here. HarryZ, an elder on this site, introduced me to Dr. Jonez's research. His wife, who passed from MS complications over a year ago, was treated with histamines. Search HarryZ as an author, and you'll get many hits on histamine treatments---
http://www.thisisms.com/ftopicp-15110-jonez.html#15110



Dr. Zamboni and a panel of vascular experts from 47 nations have classified CCSVI venous lesions as truncular venous malformations, which are congenital, and they grow as the body grow, experiencing a large growth spurt at puberty.
Here is Dr. B. B. Lee's paper on this topic:
Embryological background of truncular venous malformation in the extracranial venous pathways as the cause of chronic cerebrospinal venous insufficiency

http://www.fondazionehilarescere.org/pd ... 8-ANGY.pdf

And actually, my husband lost his peripheral vision completely as a child, no explanation from doctors. It was Dr. Dake at Stanford that surmised his venous malformations had probably been present when his optic nerve and disc were damaged by venous pressure on his drusen. I don't really "think" this stuff up....I read and ask the doctors what they think.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Calling MS "psychosomatic" is offensive. I did not will myself to have MS just as I cannot will myself to not have it.

NHE

We puncture veins pretty often in a lifetime... Even when I was authorized to donate blood and they never cut me; I swear honestly