I am new here but have had PPMS for about 4/5 years (or since diagnosed anyway).
Anyway I had the "liberation treatment" in Poland recently and have just returned from a 2 month checkup. The 2 month reason was becuse I had 2 stents fitted in my left jugular and as it was the first time they had done it they wanted to check it was still ok. The improvements I was having after the procedure were amazing but they started to tail off so I was keen to see if there was a reason. There was....
The uppermost stent had closed, this was due to a "bulbous part" of my carotid artery pressing on the stent and deforming it to the extent it was closed. Just to add insult to injury, the vein in between had also re stenosed. They angioplastied the stent a number of times but the following day it had closed up again. The surgeon was most apologetic and said that until a new stent was designed then it was not possible to do anything further. He explained in great detail what had happened and that they had never come across it before, I believe him too. I came home with all the paperwork and dvd's and instructions to see my doc as soon as possible as I was on 3 months worth of fraxiparine plus other tablets to keep my blood thin so it wouldnt clot and could get through the gap that was left. Its sods law that I would be one of the minute percentage who had a problem with a relatively simple procedure but hey ho. I am now stuck a little, my GP is concerned with the risk of thrombosis and has referred me to a vascular surgeon, I got an appointment within a week!
So my question if anyone has any clues is, Can a jugular be replaced and if it can, does anyone do such a thing?
ps, I would still recomend anyone to go with the ccsvi liberation procedure as I know how much better I felt before it closed up