I know what you mean, and that's why it's important to follow you're own instincts with regard to Lyme and MS. The Infectious Disease doc I saw first (who is a conventional doctor) advised me that Lyme and MS are almost indistinguishable. Check out this site for a list of Lyme and co-infection symptoms. It's scary how closely it resembles MS: http://www.mdjunction.com/forums/lyme-d ... a-babsiosa
The litmus test for me was to start on Doxycycline. It's innocuous enough and after a few days, I had a reaction (called a heximer). It's caused by bacteria die-off, and it causes an increase in symptoms and can cause some new ones to surface as well. It may seems counter-intuitive to keep taking something that's making you feel worse, but it is actually helping by killing the bacteria. This made me realize that I was dealing with some sort of infection as opposed to some disease of unknown origin (MS). I'm not a doctor, but for me going on Doxy was a safe enough way to tell what's going on.
It's so much more complicated than that of course, I'm now on a strict diet, doing chelation therapy for heavy lead levels, and taking a TON of supplements. But for the first time since the whole mess started, I finally feel as though I'm on the right track. [url]
PM me off the list if you'd like any referrals or any info on Lyme support groups. There's a lot of really great, helpful people out there... many staring on the same MS road as a lot of us have.