How many diagnosed with Lyme and co infections?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

How many diagnosed with Lyme and co infections?

Postby Filmmaker » Fri Dec 03, 2010 6:01 pm

I just wanted to know how many of you were given and MS diagnosis and ended up having lyme and co infections (babesia and bartonella)? I know that a lyme test can come negative even though lyme is there, so I am wondering about people who tested through Igenex.for example...
I think MS is always lyme induced, but big pharmas don't want sick people to know it... It so obvious that MS symptoms are exactly those of lyme and babesia or bartonella (check the list on the internet), that it's just insane that people keep taking immuno suppressant drugs...
lyme: white matter lesions
babesia: air hunger, lower levels of oxygen, iron and B12
bartonella: muscle stiffness, brain fog, depression...
does that ring a bell?
Hope it helps...
User avatar
Filmmaker
Family Elder
 
Posts: 194
Joined: Fri Nov 13, 2009 4:00 pm

Advertisement

Postby msgator » Fri Dec 03, 2010 6:21 pm

I got lyme years after my MS diagnosis. (complete with 3 weeks of fever and bell's palsy before diagnosis.

So in my case MS came first.

Ann
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
User avatar
msgator
Family Elder
 
Posts: 103
Joined: Wed Mar 17, 2010 4:00 pm
Location: USA

Postby Taurus » Sat Dec 04, 2010 10:02 am

MS or Lyme ? remains a mystery especially if test facilities like Igenex are not accessible. My tests IgG anf IgM (Immunoblot) also came negative. Filmmaker, I also read that people infected with lyme have white lesions in tjheir MRIs but could not find the reference. can you suggest any please.
User avatar
Taurus
Family Elder
 
Posts: 117
Joined: Sat May 22, 2010 3:00 pm

Postby Filmmaker » Sat Dec 04, 2010 12:13 pm

http://www.canlyme.com/fallonreview.html
read this or you can just do some research with google... Also lyment.com is a valuable resource...
User avatar
Filmmaker
Family Elder
 
Posts: 194
Joined: Fri Nov 13, 2009 4:00 pm

Postby Filmmaker » Sat Dec 04, 2010 12:16 pm

msgator
how do you know your lyme came after your MS? MS is just a reactivation of lyme, so you might have been infected way before your MS diagnosis but just stayed symptom free for a while... Also, fever is more a babesia co infection symptom rather than lyme itself, but the bell's palsy is lyme... How long ahve your treated for it when you gt your lyme diagnosis? Did you herx from treatment?
User avatar
Filmmaker
Family Elder
 
Posts: 194
Joined: Fri Nov 13, 2009 4:00 pm

Postby 1hunter » Sun Dec 05, 2010 12:50 pm

I agree with you filmmaker, alot of people that think they have MS actually have Lyme disease!!
User avatar
1hunter
Family Member
 
Posts: 45
Joined: Tue Jun 15, 2010 3:00 pm

Postby jenf » Wed Dec 15, 2010 7:16 am

I was diagnosed with MS by 5 different doctors, then by a team of specialists at the National Institutes of Health. Ironically, I knew they were all missing something but started the CRAB's anyway. Then after my older sister (having neurological issues) was diagnosed with Lyme in her brain, I thought.. hmmmmm. Needless to say, after seeing both her Infectious Disease doc and a LLMD in NY, I now have the CORRECT diagnosis of Chronic Lyme, with heavy metal toxicity. How many others out there? It scares me. I only wish I would've listened to someone who had posted on TIMS last year urging folks to be PROPERLY tested for Lyme. i thought I couldn't afford to do it. Now I realize what a mistake that was. At least I'm on the right track now!!
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
jenf
Family Elder
 
Posts: 106
Joined: Thu Sep 17, 2009 3:00 pm
Location: Albany, NY

Postby 1hunter » Wed Dec 15, 2010 5:36 pm

Jen,

My nero says she thinks i have MS. My LLMD says i have Lyme so i really dont know who to follow. The whole Lyme controversy is difficult to deal with
User avatar
1hunter
Family Member
 
Posts: 45
Joined: Tue Jun 15, 2010 3:00 pm

Postby Stabilo » Fri Dec 17, 2010 9:48 am

Hi all,

I have been very curious about Lyme since my MS dx in 2009 and was wondering how I go about finding a Lyme specialist or even just getting the testing done here in Alberta Canada?
"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do." ~ Eleanor Roosevelt
User avatar
Stabilo
Family Member
 
Posts: 83
Joined: Mon Sep 27, 2010 3:00 pm

Postby 1hunter » Fri Dec 17, 2010 3:45 pm

Stabilo, Is that a picture of you? wow!! :wink:

Mabe you could call Igenx labs , and they could help you find a Dr. they work with in your area
User avatar
1hunter
Family Member
 
Posts: 45
Joined: Tue Jun 15, 2010 3:00 pm

Postby Stabilo » Fri Dec 17, 2010 5:26 pm

Haha Thanks 1Hunter......it is a picture of me :) And thank you for the information :) Are you in Canada also??
"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do." ~ Eleanor Roosevelt
User avatar
Stabilo
Family Member
 
Posts: 83
Joined: Mon Sep 27, 2010 3:00 pm

Postby 1hunter » Fri Dec 17, 2010 7:48 pm

Stabilo,

You are very pretty....sorry

No, i'm from the US, Wisconsin. Lyme disease is very prevalent here. I would estimate that i have had 60 deer ticks on me over the last 5 years, as far as i know only 1 bit me, but they say alot of people that get lyme disease never even saw a tick on them.
User avatar
1hunter
Family Member
 
Posts: 45
Joined: Tue Jun 15, 2010 3:00 pm

Postby jenf » Sat Dec 18, 2010 9:16 am

1hunter,
I know what you mean, and that's why it's important to follow you're own instincts with regard to Lyme and MS. The Infectious Disease doc I saw first (who is a conventional doctor) advised me that Lyme and MS are almost indistinguishable. Check out this site for a list of Lyme and co-infection symptoms. It's scary how closely it resembles MS: http://www.mdjunction.com/forums/lyme-d ... a-babsiosa

The litmus test for me was to start on Doxycycline. It's innocuous enough and after a few days, I had a reaction (called a heximer). It's caused by bacteria die-off, and it causes an increase in symptoms and can cause some new ones to surface as well. It may seems counter-intuitive to keep taking something that's making you feel worse, but it is actually helping by killing the bacteria. This made me realize that I was dealing with some sort of infection as opposed to some disease of unknown origin (MS). I'm not a doctor, but for me going on Doxy was a safe enough way to tell what's going on.

It's so much more complicated than that of course, I'm now on a strict diet, doing chelation therapy for heavy lead levels, and taking a TON of supplements. But for the first time since the whole mess started, I finally feel as though I'm on the right track. [url]

PM me off the list if you'd like any referrals or any info on Lyme support groups. There's a lot of really great, helpful people out there... many staring on the same MS road as a lot of us have.
Jen[/url]
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
jenf
Family Elder
 
Posts: 106
Joined: Thu Sep 17, 2009 3:00 pm
Location: Albany, NY

Postby Stabilo » Sat Dec 18, 2010 10:25 am

1Hunter Thanks very much :oops: you sure made my day to say the least!
I'm not sure the prevelance of Lyme causing ticks here, but from what I've looked up on the net there were a few cases reported in my surrounding area last year....which is when I was dx with MS. I know I can't believe all of what I read on the net due to unreliable sources etc, but I would definitely like to have it eliminated or proven. I feel as if my dx was way too quick and they didn't rule out anything else before assuring me it was definite MS. I always have doubts in the back of my mind and I would just like to rule somethings out. Another I was looking a lot into lately is "Hughes Syndrome" also named "sticky blood syndrome"......is anyone here familiar with that???

Jenf.......you seem pretty informed on the Lyme, any suggestions for getting the ball rolling for me to get some testing up here in Canada :) Hunter suggested Igenx labs, which I will be trying on Monday :)
"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do." ~ Eleanor Roosevelt
User avatar
Stabilo
Family Member
 
Posts: 83
Joined: Mon Sep 27, 2010 3:00 pm

Postby 1hunter » Sat Dec 18, 2010 10:35 am

Hi Jen,

Thanks for the info. It's a tough spot to be in. The Infectious Disease doc i saw did not want to talk about lyme at all, either does the nero. or my PCP. The problem is the Lyme Dr. i saw seems a little shady, he was very quick to say it was lyme, I've had several lyme tests at different labs that were all negitive, except the one he uses, (Igenx) so he says Igenx is the only lab that knows how to test properly, that might be true OR it could be the only lab that is helping Lyme Dr.'s scam people. We will probably never know that. The fact that you had a herx is a good indicator. I was on Doxy for 8 months. I may have had a minor herx, i had a headache and a sore eye for a few days after a short while on anitbotics. My case is kind of complicated, i do have brain lesions but all other MS tests were normal. My symptoms were very very mild at the begining and are now pretty much gone, still i worry about what will happen in the future. So, do/did i have lyme? Is it the beginning of MS? or is it somthing else? I dont know. i'm thankful i feel good buti still research Lyme, MS, and a few other conditions so i can have a plan incase i get bad and find out what, if anything i have. thx for listening/reading
User avatar
1hunter
Family Member
 
Posts: 45
Joined: Tue Jun 15, 2010 3:00 pm

Next

Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: Kronk