Brownsfan wrote:Don't get me wrong, I'm ready and willing to start ABC therapy if necessary and don't discount the fact that it lessons symptoms in many people.
Brownsfan wrote:Just had an appt. today at the "prestigious" Cleveland Clinic after recently being diagnosed with RRMS. Went to see Dr. Cohen who reviewed my MRI's, history, etc. and, as expected, confirmed the fact that I have MS. However, the Dr. wouldn't even entertain the idea of prescribing LDN and in fact became visibly agitated when I mentioned it. I am convinced that many neuros are simply drug pushers working for the drug companies. They tried to sell me on Avonex as if it were a used car. Don't get me wrong, I'm ready and willing to start ABC therapy if necessary and don't discount the fact that it lessons symptoms in many people. However, I want (and expect) my neuros to have candid discussions with me on approved and alternative treatments. This guy didnt' fit the bill.
ps. I was also told in no uncertain language, that 80% of MS patients will end up in a wheelchair. Great MS Center we have here in Cleveland.
Thanks for this post. The images we often see on websites are those with severe ms - either slumped in a wheelchair or bedridden. The EDSS gives one the impression that you just work through the scale until number 10 when you meet your maker.
It's good to hear that it doesn't always have to end up that way (or not in the short term). Can I ask what sort of MS you have and what you have taken for it?
davwhi wrote:bromley wrote:davwhi,
I would now be classed as Secondary Progessive.
When I was first diagosed there was nothing to take, so for years only a few vitamins plus visits to a chiropractor and physical therapist. Lately I've been using Baclofen for the muscle spasms. My neuro still says the side effects of the CRAB med's would be worst than my current situation.
Users browsing this forum: ElliotB