roadaction13 wrote:yeah well that's the thing - I want off of tysabri - tested positive for JC virus, going in for infusion #7 or 8 next week...
but the wormsellers say that you should stay on your treatment and slowly reduce the dose over 3 months - which makes me think they havent' dealt much if at all with tysabri, though he said he thinks there's been 1 or 2 people...
but if I start while still under a year of infusions, i'm still not much in the danger zone of PML, and figure I could start spacing out the infusions - 4 weeks, then 6, then 8, then 12, then off, something like that?
not sure what to do - or if I'm going to throw down the cash for the worms - it is a chunk of change, whereas fortunately my insurance covers all but $1.60 of my tysabri infusion (!)
any other thoughts, advice appreciated.
I'll start by telling you what I tell everyone considering helminthic therapy: You're going to be assuming a risk.
That's not say that there's any MS therapy with out risk. Being on Tysabri, you're obviously well aware of that fact. The difference with helminthic therapy is that the risks are less known. From the research I've done, it appears to be generally effective and safe in comparison, but there are still many unknowns. Reactions and complications from combining therapies is one of those unknowns.
As Bob pointed out, both regulate the immune system. As of yet, I haven't seen any information pertaining to helminthic therapy and the JC virus. Essentially, you would be sailing into uncharted waters. Your experience could turn out to be very valuable to the MS community at large, as well as very effective for you, I would hope.
It's great that you're working to educate yourself as much as you can before making your decision. For that reason, I trust you'll be able to choose wisely.