This Is MS Multiple Sclerosis Community: Knowledge & Support

I have had a really decreased sensation in my groeing area for about 8 months now, last few months seems like its even worse. I just started LDN so I am hoping that will stop "worsening" and im about to start ABX.

The weird thing is, I can feel my brain remapping around the damage. For example, my groeing numbness is a bit worse than it was before, but now i feel strong sensation in my left foot.

So when my groeing is stimulated i feel a strong sensation in my left foot, and that is the area that surrounds the groeing in the humonculus.

Is that a good sign that maybe my brain is repairing and sensation might return to normal? This is honestly one of my worse symtpoms and pretty much destroyed any chance of a sex life I have.

I'm trying to stay positive but its really crushing my spirits.

hi again tyr, refresh my memory, did you ever try any nutritional stuff?

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Yes I have on a few occasions.
I went very numb down my right side a long time ago, but it lifted over the course of a few months.
Then I had a half-numb half-body (I was numb exactly on the right half) for another few weeks, it came back.
I get toes and patches of numbness on and off, it always passes over time.
Tyr hope yours will pass too.

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Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
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Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.

The only thing that worries me is this has lasted like 7 months.


Also supplement wise. Yeah I am just starting things now. My doc just put me on LDN 2.0MG a week ago or so. Also, I am taking vitamin D, B and DL-phenalynine(for ldn), and Alpha Lipoic Acid. I plan start taking minocycline next week. I'm in debt ATM, so makes it hard to get a good range of supplements.

tyr i hear you re $$$ i have to get help from family these days

it's important to balance d supplementation with adequate intakes of calcium, magnesium, and zinc. whenever your budget allows i strongly suggest you consider working those in!

vitamin E is another good one. specifically, E8 complex with 4 tocopherols and 4 tocotrienols. in food, raw sunflower seeds are a great source - 1/4 c per day. it helped me regain lost position sense and SOMEthing helped me get feeling back 'down there' (wish i could isolate which one)

check this out.. http://www.nmdinfo.net/disease_deatails.php?id=28

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Hi Tyr--I've had numbness issues several times over the years, although never "completely" numb. I've had it go away in some places, and not in others. I currently have some numbness in my left hand--especially on my index finger--and it's been that way since July. Been trying some meds--Tegretol, Neurontin, just started trying Cymbalta today. I know how you feel--the longer it lingers, the more hopeless you fee.

But--even though there's no way to know for sure, your issues could still go away, and I sure hope they do!
Hang in there!

(Thanks, Jimmy, for always sharing your supplement knowledge. I have to admit, I really haven't done a whole lot with supplements--and I really need to!)