I'm getting tested and am pretty nervous

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I'm getting tested and am pretty nervous

Postby lenny » Wed Mar 09, 2011 10:20 pm

Friday I have my first consult appt with a neurologist to get tested for MS. I know so very little about this disease.

A number of years ago it was suggested I ask to get tested but I chose to kind of ignore this. I really didn't think I had it so did nothing. I have lately decided to start taking better care of my health so asked for this test. After they called with my appointment, I did some googling and found there are a number of other symptoms I have that may be related as well. So slowly a sense of panic is beginning to set in.

I'm trying to be rational about this. Really a lot of the symptoms could be for so many other reasons. For instance, fatigue. Well, I am out of shape so really that could explain that completely.

Honestly, now that the appointment is made I am getting super freaked and scared about this.
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Re: I'm getting tested and am pretty nervous

Postby NHE » Fri Mar 11, 2011 1:56 am

lenny wrote:Friday I have my first consult appt with a neurologist to get tested for MS. I know so very little about this disease.

A number of years ago it was suggested I ask to get tested but I chose to kind of ignore this. I really didn't think I had it so did nothing. I have lately decided to start taking better care of my health so asked for this test. After they called with my appointment, I did some googling and found there are a number of other symptoms I have that may be related as well. So slowly a sense of panic is beginning to set in.

I'm trying to be rational about this. Really a lot of the symptoms could be for so many other reasons. For instance, fatigue. Well, I am out of shape so really that could explain that completely.

Honestly, now that the appointment is made I am getting super freaked and scared about this.


What were the reasons for the original recommendation? MS shares many symptoms with other diseases, some of which are very treatable. MS is often a diagnosis that remains once everything else has been ruled out. You may wish to read through this page (or one like it) to know what you're getting into. http://www.msrc.co.uk/index.cfm/fuseact ... pageid/744

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Postby lenny » Fri Mar 11, 2011 8:35 am

Basically, this all started with the fact that I lost about 70% of my sight in one eye and about 20% in the other for no reason. My optical nerves are just dead.

When I later went to the dr regarding my fingers and toes going numb frequently they thought maybe MS should be looked into.

Honestly, I haven't been getting a huge push to get tested so it could really be nothing. I been ignoring the recommendation but it's kind of been at the back of my mind so I just want to get this over with.

There are some other symptoms that could (or could not be related) but I guess I'll find out. The appointment is in 4.5 hours and I'll see what happens from here.
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Postby lenny » Fri Mar 11, 2011 6:43 pm

I was really hoping the doctor was just going to send me on my way with a scolding about wasting his time ... and during the appointment I almost thought that was the way things were going but MRI bound I go.

Will find out more in 4 months (my next appointment).
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Postby Cece » Fri Mar 11, 2011 8:25 pm

Four months seems like a really long time to wait between appointments? When I was getting diagnosed, my GP ordered the MRI, I had that done, I was in to the neurologist two week after the MRI, bam, he gave me the diagnosis that day.

(In four months, a person could definitely get their jugulars scanned for CCSVI in MS..... ;) )

Wishing you the best, lenny, it can be hard for the neurologists to figure out this disease because it is a slow chronic disease. Has your eyesight recovered? Props for choosing to take better care of your health.
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Postby lenny » Sat Mar 12, 2011 10:50 pm

One of the problems with Canada's health care is how backed up everything is.

It will take probably about 3 months to get in for an MRI. The 4 months is just to make sure the neurologist has the results and he books up well in advance too so suggested I make the appointment now.

And my eyesight has never recovered.
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