Copaxone Users. Need info Asap...Thanks in advance.

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Copaxone Users. Need info Asap...Thanks in advance.

Postby T19 » Mon Apr 18, 2011 2:37 pm

Hello
I was on Copaxone before being placed on Tysabri. I recently tested positive for the JC Virus so they have taken me off Tysabri and placed me back on Copaxone. When I was first on Copaxone, I was not sick with the meds. I had bad site reactions and all and initially felt a little cruddy but this time around after my first injection I was so sick that I nearly needed to go to the Emergency Room. I waited a day and then took another injection but only took 1/2 and same thing, I was so sick and out of it for 2 days. I do not recall this with the drug the first time.

I also swelled up, not like an allergic reaction but just swelled up, bloated up and it was terrible.

Has this drug been reformulated or something? Anyone else suffer from this. I'm at the end of my rope with these meds. I cannot do Betaseron/Rebif...at all I don't want the once a week IM and so I'm stuck with this one shot ( I refuse to try the new pills..too many issues)

Any advice? Is this the new Copaxone or what? I just cannot go on this way with these side effects. I'm not giving up my job and I cannot even move after a shot. I'm so sick its ridiculous.

Thanks in advance for your help
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Postby Waterbear » Mon Apr 18, 2011 3:37 pm

Hi there,

I dont think Copaxone has been reformulated, my girlfriend was on it until 3weeks ago and we would probably have been informed if it was the case.


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Postby T19 » Wed Apr 20, 2011 3:58 am

Hi Waterbear....
Is she off the meds now? I cannot believe how much different I'm reacting to this drug vs the initial time I was on it.
Thanks for the info.
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Postby Waterbear » Wed Apr 20, 2011 8:52 am

Yes she is off Copaxone now. She tolerated the drug very well for the entire time she was on it, but dropped it last month to receive the first round of Campath infusions .
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