ms at older age

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ms at older age

Postby sous » Tue Apr 26, 2011 8:18 am

I was told by my neurologist, that my ms is now too weak (withered away) to attack..
I am 56yrs old female with ms since 13 yrs, on copaxone daily injection since 6 yrs, and no attacks at all.
So, his theory is that at my age with such ms history, ms has withered away.. therefore, he might suggest stopping copaxone, only after seeing a new mri for spine and neck..

have you heard of similar medical opinion?
Many thanks,
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Postby Filmmaker » Tue Apr 26, 2011 11:08 am

absolutely! Google MS burns itslef out after about 25 years... The worst damage is done during the first 5 years of progressive disease, then it gets weaker and weaker... just like any other auto immune disease by the way... but this is very hidden info as there's just too much money involved to let people know that medication will not help in any way but that some day, the disease will have run its course...
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Postby sous » Tue Apr 26, 2011 11:59 am

Hi Filmmaker,
Absolutely?????????

This is the best email i have ever received.... thank you so so much for this great news... oh my God... I will start the search right now..

Have a beautfiul day
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Postby lovebug » Tue Apr 26, 2011 1:14 pm

Is this really true!!! You mean if I can survive through the first 5 years than I am just coasting through life. Doubt it folks!! But its always `Good to Dream`..............
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Postby Filmmaker » Tue Apr 26, 2011 3:25 pm

lovebug; not the first five years, but the first PROGRESSIVE years of MS... 75% of the damage is done during those years, it does continue a little later, but it gets less and less agressive... research that, you ll see, same applies for RA, Behcet etc... That means if during the progressive phase, you do not end up in a wheelchair in the first five years, chances are you will never need one...
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Postby Filmmaker » Tue Apr 26, 2011 3:26 pm

sous, I've pmed you, check your messages :-)
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Postby paul2008 » Fri Apr 29, 2011 9:50 am

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Last edited by paul2008 on Fri Mar 01, 2013 2:12 pm, edited 1 time in total.
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Postby LR1234 » Fri Apr 29, 2011 10:54 am

I know one person personally whose MS stopped progressing but she dramatically changed her diet. She has remained stable for years. (Susie Cornell)

Terry Wahls seems to have reversed her disease process.

Those ladies that wrote the MS recovery diet no longer are progressing (it seems).

They all had secondary progressive but were active in order to get it to "burn out"
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Postby Filmmaker » Fri Apr 29, 2011 12:30 pm

Paul there are many articles about that on the internet... However it may take up to 25 years... just like many other auto immune diseases... One simple explanation could be that as we age the immune system becomes weaker, so the inflammation stops...
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Postby Filmmaker » Fri Apr 29, 2011 12:31 pm

And I also agree with the very strict diet, ( iam on a gluten, diairy and sugar free diet), as you know many people with MS have food allergies and -or get diagnosed with celiac...
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Postby Wonderfulworld » Fri Apr 29, 2011 1:07 pm

You know, one part of me thinks...hmmmmm?? but perhaps this really is a reality in some people with MS. I do have a distant relative (not blood relation) who this happened to. She was extremely disabled during her 30's, so much so her family thought she might not make it to 50. Then she stabilised in her late 40's and now she is late 60's, doing ok, swimming a little each day. But perhaps the damage incurred in the first 5 years of progression was negligable for her and she had a mild disease course once she reached 50.
Unfortunately for so many others this is not the case but it is good to think of the positive from time to time!
~~~~~~~~~~~~~~~
Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
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Postby paul2008 » Fri Apr 29, 2011 1:55 pm

yes, i've been reading this a few times recently about having a weaker immune system when we're older causing less inflammation, but with lots of people their MS starts in their early 40's!!
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Postby maynaka » Fri Apr 29, 2011 3:49 pm

I was diagnosed in 84 but did not experience any symptoms until 2001.

I am on my second neuro and neither one has been comfortable specifying what type of MS I have; both have outstanding reps from top hospitals.

I have been following the Wahls program since March 1. My only disability is really walking (or lack thereof). No improvement yet; but my thought is it took nine years to get to this point, so it might take a while to walk again.

Certainly not giving up!
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Postby maynaka » Fri Apr 29, 2011 4:17 pm

Just wanted to add that I do agree, with this disease everyone is different.

Prior to 2001 I was convinced I was misdiagnosed but the MRIs and other earlier tests showed MS. My problem was I was in a very stressful job...add graduate school and a bad diet and there you go!!!

I do believe it can be reversed. I'm reading a really good book "Power Up Your Brain". Recommended by The Healing Coach (I think I signed up for her email newsletter on the Terry Wahls website). It talks about how mindset, etc. can have a physical influence on your brain. A good read!

M
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Postby sous » Fri Apr 29, 2011 5:29 pm

Hi Maynaka,
Since when did u start having walking problems?
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