What do I do next?
Any advice would be welcome.
First of all, welcome to the forum. You will find a lot of good information here. What you do with it, of course, is your decision.
I don't have MS, my wife did for 36 years before she passed away over 3 years ago from other complications. I saw first hand what the frustrations of this disease can do to people. I can understand the feelings you have at the moment.
My first suggestion is have your neuro recommend the closest MS clinic. He/she may or may not think this is necessary but I have learned over the years that all neuros are not created equally and when it comes to MS, you should go to the experts as opposed to a neuro who may have some MS patients. MS is a very hard disease to diagnose and there is no one test that can do this. It is usually a combination of clinical symptoms, MRI and possibly a spinal tap to determine if you do indeed have MS. And even then you sometimes hear of misdiagnosis at this point. Some patients get diagnosed quickly while others take a few years to do so.
Once you do have a diagnosis, you will be presented with a number of treatment options. Choosing which one is the difficult part because what may help one patient does absolutely nothing for the next one. Some neuros have their favorites while others may give you the information available and ask you to choose which one you want.
I would certainly look at having your jugular veins checked for CCSVI. The liberation treatment is quite new and there hasn't been a lot of research done yet in this area. As of now, there is not enough scientific evidence that it works but there has been a lot of positive anecdotal reports for it. Again, it has done wonders for some but nothing for others.
Most neuros will want you to start on one of the approve drugs for MS....referred to as a CRAB (Copaxone Rebif, Avonex or Betaseron) of Tyasbri. As well, there are the new orals, Gilineya and one other which is about to get approved soon. But be aware all of these drugs are powerful immune system altering medications and can have a lot of nasty side effects.
Do your research, ask a lot of questions and then make an informed decision. There are a lot of MS patients on this forum and they will be glad to tell you of their experiences in helping you choose what direction to follow.
Best of luck.