Lyon wrote:http://www.youtube.com/watch?v=ZunEIZ9F-tI For those who, like me, like to watch videos with interesting speakers rather than dry reading.
I thought you were with us? A small group of warriors that believe in freedom of speech, believe that there are some good neuros out there, believe that the immune system plays a role in this disease.
You shouldn't need to be incentivised to join us, but I'm happy to forward a Royal Wedding commemorative plate if that helps.
PS Algis - I won't mention your name again (it will be our secret).
shucks wrote:Thanks, I just spent half a day watching everything with Giles on it on youtube. Why do you think that he brushed over the stem cell thing pretty quickly and seemed to dismiss it as promising but not realistic? I am a newbie, and have been really thinking of fund raising to try to get an hsct treatment. Everyone who talks about it seem to say it works wonders on 80 percent of people. My illness is progressing quite fast in the last 6 months, and I'm just trying to get my best hope at getting better. I'm always interested in advice here, so bring some on. Campath seems to be a great drug, but would you need campath if the beam protocol stopped progression and maybe made you a little better?
I'm still lost in all of the info out there and am reading everything I can about each treatment I can find. I am always interested in everyone's perspective.
Thanks for any advice.
shucks wrote:with all of the stuff out there on hsct, do you think it is disengenuous to think it is a great treatment at this time? I am just exploring.
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