Here's a long range study with 5% overall mortality at 100 days, but the percentage grows with time. Honestly, from what I could find, the percentages on mortality are around 2-3% for MS at 100 days...higher for other conditions. Cardiotoxicity isn't great, either, and leads to mortality further down the road. Harry's larger point is well taken.
http://neurologiayneurocirugia.com/atta ... logica.pdf
Autologous hematopoietic stem cell transplantation for autoimmune diseases: an observational study on 12 years’ experience from the European Group for Blood and Marrow Transplantation Working Party on Autoimmune Diseases
...the 100-day transplant-related mortality was 5% (95% CI: 3–7%). The causes of death are summarized in Table 3. At the time of analysis (December 2007), 789 patients were alive and 111 had died: 43 (38.7%) from their original disease and 59 (53.1%) from transplant-related causes (Table 3). Infections (45.7%) were the leading cause of transplant-related mortality. Death due to cardiac toxicity (8.4%) was not related to a specific type of conditioning. As shown in Table 4A, the 100-day transplant-related mortality was 2% for MS, 6% for SSc, 1% for RA, 11% for SLE, 11% for JIA and 8% for HIC, with a statistical difference depending on type of autoimmune disease (P< 0.001).
Fact check: Angioplasty has not killed anyone treated for CCSVI. The two tragic deaths reported were due to after procedural blood thinning... one a stroke tied to coumadin (which is a risk with that drug) and one a clot developed due to a lack of blood thinning and death due to aggressive thinning. The regimen is much better now than when we started...the US doctors are using Artrixa and Pradaxa post procedure and having better results. Also, angioplasty is not well-suited to medical tourism and travel. Best to stay close to home and be part of a trial.
Life is all about mitigating risk. With MS, patients need to decide risk vs. benefit ratio. Not very easy these days....
Becia---I'm very sorry you haven't found relief yet--all best to you and I hope you get more info on Cladrabine.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS