coral wrote:
Hi,
I've been on Copaxone for 3 months and besides the nausea, vomiting and massive sore lumps it has generally been ok, until Friday. I injected into my stomach and when I took the needle out a lot of blood shot out, and then under the skin of my stomach it looked like red wine had been spilt - it spread down my leg and across my navel like poison. Then I got a weird metallic taste in my mouth, couldn't breathe and woke up on the bathroom floor. I was passed out for 10 minutes (guessing because I hit my head on the basin on the way down).
It really freaked me out - has anyone ever had anything like this? The nurse says I hit a vein, but I have injected into that spot before and I honestly don't know how to tell if there is a vein there or not? The whole area is now extremely painful, swollen and blood red. I don't want to switch to the interferons but really don't know what to do?
Any feedback would be really appreciated, thank you!
Hi Coral,
YIKES!! How disturbing! I see this is your first post, so you may not have seen there's an entire sub-forum here on Copaxone (plus forums on all the other MS meds). You might get some good info there.
I've been looking that forum over, because after 8 years of accepting my non-med approach, my neuro finally
ordered me to take a CRAB med - any CRAB med - at my visit last week (in a stern voice). She settled on Copaxone, but I'm basically med-phobic and I doubt I'll take it now, after 38 years of MS without a med.
Anyway, I haven't seen your particular incident yet, although I'm sure I've read about people hitting a vein with their injections somewhere on here. I'm also concerned about the nausea, vomiting, and passing out, which are much more rare than the lumps.
Here's a link to the whole Copaxone prescribing info, which lists all the reported "adverse events" and percentages - and doesn't even mention gushing blood or passing out. Yikes again.
http://www.sharedsolutions.com/pdfs/Pre ... ation.aspx
Please, please contact your neuro right away with your experiences. After 8 years reading about injection incidents that are worse than anything I've ever experienced with MS, I always wonder whether the neuros know how bad they can be - and how scary. Patients usually say they've called people like Shared Solutions first, and often don't want to bother their neuros.
I personally don't even consider "nausea, vomiting and massive sore lumps" okay at all. And I find the rest of your experience truly terrifying! (Did I mention my medphobia....

)
Keep us posted on how you're doing and what your doc says about it. Good luck!