Fatigue often first symptom of MS

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Fatigue often first symptom of MS

Postby MSUK » Mon Jun 06, 2011 2:20 am

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Months or even years before demyelinating events are recognized, patients later diagnosed with multiple sclerosis often turn up in their doctors' offices complaining of fatigue, a researcher said here.

Among patients receiving MS diagnoses after 2005, records of nearly 30% indicated that they had reported fatigue to their physicians beforehand, said Joseph Berger, MD, of the University of Kentucky in Lexington, in a presentation at the annual meeting of the Consortium of Multiple Sclerosis Centers (CMSC).... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/1327
MS-UK - http://www.ms-uk.org/
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Postby mrbarlow » Mon Jun 06, 2011 12:20 pm

Yep - that was my experience.

Spring & summer 2010 fatigue and tingling in my feet. November 2010 - Optic Neuritis.
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Postby Wonderfulworld » Mon Jun 06, 2011 12:49 pm

My experience too, aged 12 hit with very unusual fatigue for a few weeks (everyone said 'growing pains') as well as the start of tinnitus.

Age 15 was getting mild foot drop (everyone said 'shin splints').

Age 16 lost my balance for a while (everyone suspected I was worrying) and started having to use the loo at night.

Diagnosed age 25 - 13 years ago now.
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Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
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Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
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Postby rena77 » Tue Jun 07, 2011 5:53 am

Same here. When the MS started I was still working and it was like : going to work, coming back home and just falling asleep. Never been so tired and exhausted in my entire life.
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Postby annmarie » Wed Jun 08, 2011 12:33 pm

This is what happened to me. I had so much fatigue and the tingling. I went to 3 docs before I was diagnosed.
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Postby paul2008 » Sun Jun 12, 2011 2:15 pm

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Last edited by paul2008 on Sun Mar 02, 2014 10:48 am, edited 1 time in total.
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Postby civickiller » Mon Jun 13, 2011 1:11 am

I don't remember feeling any fatigue before I got diagnosed.
I was playing sports, lifting weights, working 14 hour days
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Postby joeymia » Mon Jun 13, 2011 3:41 pm

Same started in my early 20's. Got brain washed into thinking I was depressed since that's all you see on TV. Went to a psychologist. Are you tired? Does that make you sad that you are tired? Were you active before? OMG U BIPOLAR!!! what a racket that is... Tired various drugs none work. One almost killed me (mild case of Stevens-Johnson) After a year I gave up on that but got I better. (Relapse) Doctor said that is because I am having a manic episode now. Flushed all the pills and never saw her again

I can't even find where that doctor went. I would like to explain what irresponsible asshole she was. I bet she pushed pills on every person that walked through the door and made a nice commission check from their sales rep.
Last edited by joeymia on Mon Jun 13, 2011 3:44 pm, edited 1 time in total.
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Postby joeymia » Mon Jun 13, 2011 3:42 pm

paul2008 wrote:that is so true......i gave up 2 jobs because i was so tired and totally exhausted all day and didn't know what was causing it. MS was diagnosed 4 years later and i still have the same severe fatigue.


have you tried Modafinil (Provigil) It has worked wonders for me.
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Postby joeymia » Mon Jun 13, 2011 5:57 pm

joeymia wrote:Same started in my early 20's. Got brain washed into thinking I was depressed since that's all you see on TV. Went to a psychologist. Are you tired? Does that make you sad that you are tired? Were you active before? OMG U BIPOLAR!!! what a racket that is... Tired various drugs none work. One almost killed me (mild case of Stevens-Johnson) After a year I gave up on that but got I better. (Relapse) Doctor said that is because I am having a manic episode now. Flushed all the pills and never saw her again

I can't even find where that doctor went. I would like to explain what irresponsible asshole she was. I bet she pushed pills on every person that walked through the door and made a nice commission check from their sales rep.


wow was curious about the drug that gave me Stevens-Johnson and I find this...

http://www.aboutlawsuits.com/trileptal- ... ing-13196/
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