This Is MS Multiple Sclerosis Community: Knowledge & Support

What sort of conspiracy? That's just how the world of MS medicine works. It's been that way for decades. People have made a lot of money out of this process.



Yep. Whether it works or not. And some of these docs get paid a nice chunk of money by the drug companies to prescribe their medications



I won't disagree in general what you are saying here but don't you find it strange that the same line of research (autoimmune system altering drugs) costing billions of dollars are all that the research development people have developed and supported for decades? Big pharma is in this for one reason and one reason only...and that is to make as much money as they can from the MS drugs that they develop. Their marketing and sales costs far outstrip their research output. But that's what they are in business for....not to find a cure for MS or even worry about what causes it.



What has been discovered in the last decade as far as MS medications are concerned? Monoclonal antibody treatments which shake up the immune system even more than the CRABs ever did...along with the nastier side effects. But I have to admit the new drugs have contributed big time in one way....they have allowed the companies to who make the CRABs to raise the cost of their drugs dramatically since the new ones cost even more. You would think that a product that has been out for almost 20 years now would start to drop a bit in price!!



And those HSCT trials are double blinded?



I guess it's so overwhelming it still can't prove that MS is an autoimmune disease!!



Oh yeah...I forgot about the poor EAE mouse. Hasn't been one treatment that has worked on MS mouse that has worked in humans!!



Probably because the number of patients that have had HSCT treatment isn't anywhere near the number of people that have had CCSVI. Sure HSCT may hold promise but what does that have to do with the readers' views on CCSVI or any other possible MS treatment? Absolutely nothing in my opinion.

Harry

Very good points, CV.

Harry,

You remind me of people I sometimes run into who believe that we never landed a man on the moon.

And on that note, how can I be sure that the moon isn't made out of cheese? Where is the proof? I have never tasted the moon so I am going to believe it is made of cheddar until someone gives me a piece and proves otherwise. But then again how can I be sure if this piece of the moon is real?

And you remind me of the people that Bertrand Russell refers to in his famous quote:

"The fact that an opinion has been widely held is no evidence whatever that it is not utterly absurd; indeed in view of the silliness of the majority of mankind, a widespread belief is more likely to be foolish than sensible."

What's this about cheddar? Everyone knows it's Wensleydale





Sorry, I just couldn't resist...

NHE

This is exactly what the neuros and big pharma want you to think!

Hey Moom..understand ur comment re not sharing ur plans 4 trying something new. my daughter tried a new non-traditional route 5 years ago (natural supplements). results have been amazing! (her ms specialist took her off of all ms meds & she has never returned to them.) as her mom..i was SO EXCITED! couldnt wait to post on my fav MS site..thisisms. Well! i was attacked on every side..accused of being a charlaton...of having a vested monetary interest in the company providing supplements, etc etc etc. it was amazing how vile and evil the comments were! all i was trying 2 do was share some wonderful news for all of u who suffer so much on this site. as a mother, i also suffer..i would give my life for my beautiful daughter to not have this evil disease! she recently had her first child..she is not only surviving but thriving!

I wish u the very best in ur nu endeavor. DONT EVER STOP SEARCHING & DONT EVER GIVE UP! My prayers 2 u and all on this site! (I apologize for all the abbreviations but i text alot..LOL)

Chris55,
thanks. We are on the same page. Good luck to your daughter.

Chris,

I've participated in a number of MS forums over the years and have seen quite a bit when it comes to how people can respond in various threads. In general I have found that the MS patients (with their relatives) who have used the alternative medicines for treating their MS, are far more tolerant to other people's opinions. Those who align themselves stringently with the established scientific MS community are more likely to be the ones who have little or no tolerance to those who try something different and unproven and are apt to "attack" you.

Of course, there are always exceptions to this but this has been my experience.

Harry

HarryZ..u could b right. i have always felt that people feel like "if i have a serious ailment, i must need expensive, serious medication--from a medical doctor". and i absolutely understand that reasoning. i have always been a strong advocate of the medical community. politics aside. they truly perform miracles! its when they truly "dont know" that i have no problem educatung myself. i did that with MS and a medical problem i had/have that the medical community had no help for. I was ultimately successful n finding something that worked for me..and continues 2 work 40 years later. In searching MS, i quickly realized they really DO NOT know what causes it! they made a choice..autoimmune..and focused the research in that area. so far, unsuccessfully. I believe in trying ANYTHING as long as it does no harm and does not require one to mortgage his/her home or soul! what is there to lose in trying..i know, hope is difficult 2 maintain n the face of failure but i have always been a fighter and dont know how 2 give up..lol! thanks 4 ur comments..really appreciated!