This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 1:46 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 3 posts ] 
Author Message
 Post subject: IVIg
PostPosted: Thu Jul 07, 2011 5:44 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1420
Location: California
Hi all,
I have the option of trying this treatment but not sure if the risk/benefits are worth it. My fears are CJD and other unknowns being transmitted.
Has anyone had this treatment? Did it help at all? Any negative reactions?
Thanks


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 15, 2011 8:20 pm 
Offline
Family Elder
User avatar

Joined: Tue Jan 03, 2006 4:00 pm
Posts: 554
Hi, I started IVIG therapy three months ago, and it's the first MS treatment that has had any positive effect on me whatsoever.

I'm PPMS (although the diagnosis is up in the air), diagnosed over eight years ago. Right side very weak and spastic, left side weakening.

After doing IVIG, I've noticed considerable increased strength in my stricken right side.

Although there is reason for concern about the transmittal of blood-borne illnesses, there are a variety of brands of IVIG, and each one is processed somewhat differently. Much of this processing is designed to minimize the danger of disease transmission.

I do get the odd side effect of 3-5 days of fever following my monthly infusions. Typically, patients might get fever or headache the night after an infusion, but it's fairly unusual to be socked with multiple days of it, as I am.

Still, fevers and all, so far it's been well worth it…

_________________
Marc
www.wheelchairkamikaze.com


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jul 16, 2011 1:42 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1420
Location: California
Thanks Marc, I am so pleased it is helping you, Long may that continue x


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 3 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Has anyone tried IVIG?

pincushion

7

2413

Tue Aug 17, 2004 8:48 pm

mattiejo View the latest post

There are no new unread posts for this topic. IVIG

RuSmolikova

0

1109

Sun Jan 04, 2009 11:58 am

RuSmolikova View the latest post

There are no new unread posts for this topic. IVIG for exacerbation???

notasperfectasyou

1

1085

Sat Apr 21, 2007 1:37 am

TonyJegs View the latest post

There are no new unread posts for this topic. ivig immune globulin

kirsten

3

926

Fri Aug 20, 2010 6:56 pm

LauraV View the latest post

There are no new unread posts for this topic. whirlwind of a year- getting IVIG, ? diagnosis

Bella98

8

688

Sun Mar 18, 2012 7:19 pm

Bella98 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: