too many ifs and buts

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

too many ifs and buts

Postby fee001 » Mon Jul 11, 2011 2:37 am

Hi!

It was a French gut back in 1800 and something after autopsy on an ms patient discovered lesions on the brain.

This theory as I see it has never ever been challenged. Big mistake.

If original theory incorrect all that follows is flawed.

They chose to run with this theory and not Palmers a Chiropractor that had 5 cases of patients going into full remission, that proof they ignored.

There are many many others, this includes young adults in.. limboland.. they exhibit all of the physical ms symptoms but produce clear MRIs and LPs This indicates to me that they have gone with the wrong theory.

There are other reasons, but as people have been told over and over again that any dispute or question means that they are in denial.

Well hello!! to the medical world .. I stand up (meterphorically that is)

And DENY IT. I know that I do not stand alone, others have their doubt to
I do my own research, and find my own answers Its good to talk
User avatar
fee001
Family Elder
 
Posts: 370
Joined: Sat Jun 25, 2011 3:00 pm
Location: Notts England

Advertisement

ccsvi

Postby blossom » Mon Jul 11, 2011 8:23 pm

feeoo1, i totally totally agree. have been trying for yrs to have dr.'s look deeper and differently into my case. but, i think as long as we were more or less kept in the dark there was control and they figured it was kind of like the pied piper leading. but we are not in the dark since the internet especially and we are no longer walking in the dark. and a lot of this will be up to us to demand this. just as ccsvi has gotten known and people getting help and the research being done. when we finally get this all put together things are just bound to get better and better.

all that said, i still get pissed off big time learning that all these connections were available and known in the medical world and were conveniently or otherwise shoved in the closet.

but times are changeing. we just have to make it change. the old way of thinking and treating will not go down without a fight----but now we can fight back
User avatar
blossom
Family Elder
 
Posts: 1328
Joined: Thu Dec 03, 2009 4:00 pm
Location: south western pa.

Postby civickiller » Mon Jul 11, 2011 8:40 pm

i dont know which to try more?

get more patients to try it or
try to get Dr's to understand it?
User avatar
civickiller
Family Elder
 
Posts: 544
Joined: Thu Feb 04, 2010 4:00 pm
Location: Hawaii

bit of a mix up sorry

Postby fee001 » Mon Jul 11, 2011 8:49 pm

sorry wrong place
Last edited by fee001 on Mon Jul 11, 2011 11:12 pm, edited 1 time in total.
I do my own research, and find my own answers Its good to talk
User avatar
fee001
Family Elder
 
Posts: 370
Joined: Sat Jun 25, 2011 3:00 pm
Location: Notts England

Postby Cece » Mon Jul 11, 2011 9:03 pm

civickiller wrote:i dont know which to try more?

get more patients to try it or
try to get Dr's to understand it?

It's out of our hands now. Which is a very good thing. The doctors are at work on this. We did good getting it to the doctors. :)
Cece
Family Elder
 
Posts: 8957
Joined: Mon Jan 04, 2010 4:00 pm

Postby civickiller » Mon Jul 11, 2011 9:35 pm

what doctors are at work on this? how?

i never saw any studies or trails
User avatar
civickiller
Family Elder
 
Posts: 544
Joined: Thu Feb 04, 2010 4:00 pm
Location: Hawaii

ccsvi

Postby blossom » Mon Jul 11, 2011 9:57 pm

i've been under the understanding that there are trials and papers published on ms up the whazoo for yrs.. . the results---still no valid answers or treatments that do much all fda approved etc. but for sure eventually they will screw the good body parts up. now there are real people you can reach out and touch that are getting relief of some symptoms without harming the rest of their body. now, it might not suit main stream med. but, the proof is in the pudding.
and i hope someday when someone ask me my name-i can say just call me "puddin"
User avatar
blossom
Family Elder
 
Posts: 1328
Joined: Thu Dec 03, 2009 4:00 pm
Location: south western pa.

Re: ccsvi

Postby Trish317 » Mon Jul 11, 2011 10:13 pm

blossom wrote:i've been under the understanding that there are trials and papers published on ms up the whazoo for yrs.. . the results---still no valid answers or treatments that do much all fda approved etc. but for sure eventually they will screw the good body parts up. now there are real people you can reach out and touch that are getting relief of some symptoms without harming the rest of their body. now, it might not suit main stream med. but, the proof is in the pudding.
and i hope someday when someone ask me my name-i can say just call me "puddin"


You made me smile, Blossom. I hope and pray for that for you and everyone else, too.

Hugs!

Trish
User avatar
Trish317
Family Elder
 
Posts: 357
Joined: Sat Sep 06, 2008 3:00 pm
Location: Rhode Island

Postby Bender » Tue Jul 12, 2011 10:41 am

Just a small note if you happen to know people showing symptoms who have clear brain MRIs, make sure the spine gets checked too, my neurologist was on the fence for awhile about whether or not to diagnose me with MS (which now I'm kind of pissed he waited, but that's another issue entirely) and the second he say my spinal MRI he got off the fence.
User avatar
Bender
Family Elder
 
Posts: 105
Joined: Tue Oct 26, 2010 3:00 pm


Return to General Discussion

Who is online

Users browsing this forum: No registered users