This Is MS Multiple Sclerosis Community: Knowledge & Support

This is just my own research from my blog I have got one site I know of....

http://necksecret.com/Lyme_Disease.htm/

........Tuesday, 9 November 2010Yet another angle .......
Lymes
Caused by a bite from a tick, leaves sometimes a bullseye shaped mark which maybe painless.

After rash symptoms may be

fever
headache
swollen lymph glands
muscle and joint pain
general feeling unwell

If not treated promptly
fever
headaches
stiff neck
joint swelling
fatigue
joint pain
knee pain
arthritis

A blood test can confirm diagnosis
Posted by my ms/mess at 03:29

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I do my own research, and find my own answers Its good to talk

How long after infection would it be impossible to detect Lyme with the standard tests?

Could "chronic" form of Lyme (like 10 years after infection) appear identical or close to MS?

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If you can't explain it simply, you don't understand it well enough. - Al Einstein

my initial ELISA test came back possitive (which was not suprising) therefore i was sent for a second test called the 'western blot' test. that one came back negative.

there is a lot of information on this subject and it's quite complex imo and i'm not sure how accurate any of it is.

it seems worthwhile for anyone that might have MS to be tested for lyme.

Both my ELISA and World Blot came back negative.

Just throwing this out there - is it possible that after a certain period of time that Lyme cannot be detected?

Netflix has a special documentary about Lyme. From what I gathered, Lyme-literate doctors were prescribing long term antibiotics for patients but I wasn't sure if they tested positive for Lyme.

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If you can't explain it simply, you don't understand it well enough. - Al Einstein

Hi!

http://www.lymeinfo.net/multiplesclerosis.html

I am not an expert but there are those out there that are.

google lyme and ms


fiona

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I do my own research, and find my own answers Its good to talk

Hi Almost Clever,
It's not uncommon to test negative for Lyme, despite the amount of time one has been infected (that's my understanding). The criteria the CDC uses for a "positive" diagnosis disregards some important Lyme markers that many of us have. If you suspect you have Lyme, the most important thing you can do is find a good Lyme Literate Medical doctor. Just like the rest of the medical field, there are good ones and bad ones, so choose carefully. I went onto several different Lyme forums for referrals. I started out diagnosed with MS, but ended up with Lyme. I still test negaative, so you have to trust your instincts. I know when you're sick that's a lot harder to do, but unfortunately, we are left with few options. I hope you find the answers you're looking for!

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Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Doxycycline - 09/10-02/10
Flagyl: 02/10-12/10
Bicillin IM: 09/11-03/12
CHRONIC LYME - 12/10

Remember, today is the tomorrow you worried about yesterday..

reposted

selected Lyme topics 2005 to present

2005
http://www.thisisms.com/ftopict-1729-lyme.html
http://www.thisisms.com/ftopict-1672-lyme.html
2006
http://www.thisisms.com/ftopict-2308-lyme.html
http://www.thisisms.com/ftopict-2359-lyme.html
2007
http://www.thisisms.com/ftopict-4126.html
http://www.thisisms.com/ftopict-4372.html
2008
http://www.thisisms.com/ftopict-5159-lyme.html
http://www.thisisms.com/ftopict-5895-lyme.html
2009 (start of Lyme/CCSVI connections)
http://www.thisisms.com/ftopict-6673-lyme.html
2010
http://www.thisisms.com/ftopict-13038-lyme.html
http://www.thisisms.com/ftopict-12502-lyme.html
http://www.thisisms.com/ftopict-14593-lyme.html
http://www.thisisms.com/ftopict-14814-lyme.html
http://www.thisisms.com/ftopict-14841-lyme.html
2011
http://www.thisisms.com/ftopict-15874-lyme.html
http://www.thisisms.com/ftopict-16918-lyme.html
http://www.thisisms.com/ftopict-16916-lyme.html

another option, use forum search for author lymenurse, filtered to posts only, to read ccsvi/lyme experience

also, because there are not really any recent posts here: http://twitter.com/#!/LymeNurse

who knew

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Thanks Jenf,

That's exactly how I found my LLMD!

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If you can't explain it simply, you don't understand it well enough. - Al Einstein

Hi!

I know you are bprobably getting sick of me, but this is a relevant read


Fiona

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I do my own research, and find my own answers Its good to talk