I need help please

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I need help please

Postby Needfulthings » Thu Aug 11, 2011 2:37 am

:( I am terrified and perhaps that word doesnt even begin to measure what I have building up inside of me i feel about to explode, the time its taking for all of my tests to be completed is driving me crazy the lackadaisical way that my husband is taking this has me questioning whether there is enough left in this relationship to withstand a new illness with me.

I know its late and I know most of you in my country are probably asleep or just waking but how do you deal with the family aspect of it. I have been dealing with a steady decline for ten years with MS as a specter for the last four years and now its here...no more wondering really just a matter of the tests coming in my doctor is 90% sure its MS what does progressive mean anyway?????????????

Can you have SLE with MS or does SLE become a lost dx or a mistake and MS becomes the disease I dont want to live with both of them and thats a fact.

Thank you to any who feel like you wish to answer me god bless to all
Donna
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Heart felt empathy

Postby Okasan » Thu Aug 11, 2011 4:19 am

When I read your post my heart went out to you. I've been in the place that you are now.

There is not much to say that will make it better as it takes some time to take it all in. Sounds like your fella has stuck with you for 10 years of not so good health already, maybe he just loves you regardless and if you have MS that doesn't change the way he feels for you.

You are lucky to have found this forum, there is a wealth of knowledge available here. I found that learning as much as I could, helped me feel better about the whole thing and encouraged me to make lifestyle changes that have made me feel more well

Be kind to yourself right now, eat right, sleep right and allow yourself some stillness in the day.
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