Can anyone describe their L'hermitte's sign?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby fee001 » Thu Sep 01, 2011 5:11 am

Hi!

I was diagnosed on a positive MRI but I still doubt it.

Chiropractors have changed over the years they know a lot more now than ever. different tecniques et etc you know what its like people learn things all the time.

If say your Atlas is out, then your body become out of line, and nerves muscles cant work properly, mine have misbehaved badly.

I still have a way to go, but I expect with the help of physio as well to function properly eventually.

Ask uprightdoc on here about how things have changed over the years and would it be worth getting your Atlas checked. He could at least point you in the right direction yeah!

Fiona
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Postby lovebug » Thu Sep 01, 2011 8:11 pm

`JIMMYLEGS` Can you please explain to me what you mean when you say that`my lesions were in classic locations assoc. with b 12 deficiency? My dr. has recently started me on b 12 injections (every 2 weeks for 5 months)to help curb my nerve pain in my hands to arms. No drugs even slightly help with the pain! I want to go back and see the results of my MRI to see if I have these `classic locations` also. Thank you again for your time........You truly are a bundle of information for us on TIMS
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Postby jimmylegs » Thu Sep 01, 2011 8:44 pm

oh it's pretty basic - short story, b12 deficiency = cervical and thoracic lesions. i

had one of each :)

here's the long story (i LOVED this web site the first time i found it!!! so very, very good)

http://neuromuscular.wustl.edu/nother/vitamin.htm#B12
Testing
Serum
Low B12
Clinically significant: < 100 pg/ml
Suspicious: < 200 pg/ml
Homocysteine & Methymalonic acid: High
Confirm biological significance of low B12 levels
Homocystieine also elevated in folate deficiency
...

Pathology
Spinal cord
Multifocal axonal loss & demyelination
Localization
Cervical & thoracic
Posterior column > Anterolateral & Anterior
Peripheral nerve: Axonal loss; Occasional ± demyelination
Treatment: 1 mg i.m. q 3 months
Prognosis: Stabilization, or Some improvement
Paresthesias
Resolve within weeks
Rarely transient exacerbation after treatment
Myelopathy changes slowly if at all


at first i loved that site for the b12 but it's pretty damned awesome in other respects too. i wish i had read more and really taken it all in 5 years ago.

for example, i used to credit the b vitamins in the klenner protocol, b12 in particular, for my marked improvements in only a few days.

years later i saw a mention of vitamin e deficiency affecting position sensory and i thought OMG i was vit e deficient too, and the high dose vit E in klenner was what gave me my position sense back!!

and sure enough when you look at the vit E deficiency section of that wustl neuromuscular vitamin and nutrient syndromes web site, there it is plain as day:

http://neuromuscular.wustl.edu/nother/vitamin.htm#e
Clinical
Polyneuropathy
Sensory loss
Large fiber modalities
Sensory ataxia

http://en.wikipedia.org/wiki/Sensory_ataxia
Sensory ataxia
"Sensory ataxia is distinguished from cerebellar ataxia by the presence of near-normal coordination when the movement in question is visually observed by the patient, but marked worsening of coordination when the eyes are closed."

that was me to an absolute T. why would a vegan be deficient in vitamin e? well i didn't eat anywhere near enough nuts and seeds, because i was paranoid about the fat. and i used to be REALLY bad about not eating enough dark leafy greens. those days are no more :) i just weigh an extra 40 pounds :S le sigh.
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
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Postby jimmylegs » Fri Sep 02, 2011 6:40 am

oh dammit i forgot i have to code the indents. just click the link and go to the site, it'll save me time fixing my post :)
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Can anyone describe their L'hermitte's sign?

Postby Amir » Tue Jan 22, 2013 5:08 pm

Here is a link to a new website made by one of my patients:

http://www.msjawcure.com/#!my-epiphany/c11f4

A quote from it:

"Just before retiring that night, I felt the L'hermitte’s ‘scar’ and it reminded me to use the new brace.

Afterwards, I bent my head and the Lhermitte’s sign had completely disappeared and remained so. My ‘scar’ had healed in two minutes flat. As it sank in and I considered all I had thought about MS in light of this new ‘evidence’, I actually started to cry, a rare occurrence, because I knew at that moment that 22 years of fear, and hope, and of being careful; and my mother’s tears of fear for my potential bed-ridden life had been unnecessary."

By the way it is very unlikely to be caused by a lesion of the spinal cord as postulated conventionally because 2 out of 2 patients recovered extremely rapidly so it cannot possibly be attributed to a spinal cord lesion in our case.
Last edited by Amir on Wed Jan 23, 2013 12:37 am, edited 2 times in total.
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Re: Can anyone describe their L'hermitte's sign?

Postby jay123 » Tue Jan 22, 2013 5:55 pm

Interesting enough but my l'hermitte's sign completely disappeared after I had CCSVI angioplasty. I also had a 'blue' foot which returned to normal color after the procedure. I had some gait improvements too, but that disappeared when my veins re-stenosed, and didn't improve even after a second procedure to put stents in :( .

But, the l'hermitte's and the blue foot have not re-appeared for the last three years.
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Re: Can anyone describe their L'hermitte's sign?

Postby Amir » Wed Jan 23, 2013 12:34 am

jay123 wrote:Interesting enough but my l'hermitte's sign completely disappeared after I had CCSVI angioplasty. I also had a 'blue' foot which returned to normal color after the procedure. I had some gait improvements too, but that disappeared when my veins re-stenosed, and didn't improve even after a second procedure to put stents in :( .

But, the l'hermitte's and the blue foot have not re-appeared for the last three years.


This is very interesting. In view of what you have said and my general support of CCSVI treatment I had to revise my posting above!

Spinal symmetry treatment perhaps helps correct the venous outflow (which impacts L'hermitte's) which in your case is more permanently corrected by the stents in spite of the fact that your gait problems remain unaffected.

I wonder if others who have seen improvements in this sign following some procedure/therapy can comment here.
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