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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

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Postby Lyon » Sat Aug 20, 2011 7:33 am

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Postby ikulo » Sat Aug 20, 2011 8:00 pm

Thanks for posting... that's great news! I hope they can make it a bit safer though, the side effects of some of these treatments scare the bajeeezus outta me.
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Postby Lyon » Sat Aug 20, 2011 8:31 pm

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Postby ikulo » Wed Aug 24, 2011 8:03 pm

That's assuming that there are cells that are solely responsible for MS... or do you mean cells with other functions that also contribute to MS? Something like a T cell gone awry?

Do you think that even if we find a cell responsible for MS it will most likely have other essential functions the elimination of which will just cause further side effects and complications? I think that's what discourages me the most - knowing that the body is so complex that it will be extremely difficult, if not impossible, to suppress certain functions without affecting others. Instead of elimination of cells we'll only be able to continue the delicate balancing of suppression and function...
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Postby Lyon » Thu Aug 25, 2011 11:26 am

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hello...

Postby leetz » Thu Aug 25, 2011 5:52 pm

I don't mean to post anything negative but just mine own experience with Campath...I am in the trial and refused the option to get a 3rd dose (doses given once a year)...i have had 3 recorded relapses in the past 2 years of treatment...although i must also say that the other 2 women that were with me in the trial had good results... so just to let everyone know, it effects people with MS differently...i was diagnosed via lumbar puncture (spinal-tap) after about 8 years of symptoms. Diagnosed about 3 years ago...
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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