This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi,

I'm a newbie here but, sadly, not to MS. I'm secondary progressive diagnosed in 2007 after 28 years of relapsing remitting that wasn't diagnosed until 1999. Well, enough about me...

So I've just started using Detrusitol (Tolterodine tartrate also branded as Detrol) for urinary stuff. Anyone else using this - what's your mileage?

Best wishes,
Paul

hello my name is seeva. yes i am using this DITRUSITOL 2mg/day last 4 years. very good improvements no side effect.my uroligist regomended 4 years back. i am very happy to use this drug. if need more info please reply
regards
seeva :roll:

@seeva: what kind of improvements?

Hi Seeva - thanks for replying. I find this very hard to talk about - even write about. I still need to be attractive to my partner so I hide these symptoms - pretty well it would seem. I get a bit of stress incontinence which is hateful. Pads for men are very badly designed and next to useless. I'm hoping this drug will fix this symptom. I'm on the same dose as you. What else is available? I've heard about some exercises - called Kegel exercises, I think. Are these any good?
Take care,
Paul

I've been taking 4mg Detrol daily now for about a week. I am having difficulty adjusting to side-effects (dizziness, nausea, poor vision) and hope these will lessen with time. So far, Detrol has really helped to quiet bladder spasticity, which is a very nice improvement, and I can deal with self-cathing (Detrol essentially paralyzes the bladder muscles).

I'm wondering if taking two 2mg pills daily would help to reduce the side-effects. This might also give me the ability to control dosage as needed, for example perhaps I'd generally take only 2mg daily, but during times when I will be traveling or not have ready access to a bathroom, I would take 4mg daily.

Does anyone else do this? Are you bothered with side effects?

--Tracy

_________________
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone and Ampyra user

Does this drug help you fully void when you do go?

No, quite the opposite. With the bladder shut-down, you have no leaks, accidents, etc, but you need to self-cath 2-3 times a day to clear the bladder.

Before I started this, often in the morning I would need to go to the john every 15 minutes, and if I couldn't, I'd risk having an accident. It has been very nice to be free from this, and to feel less miserable because of bladder issues, but I don't like the side-effects. They actually make me feel more disabled than the MS does.

_________________
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone and Ampyra user