Part 2 of a 2-part post:
Buela wrote:My first question is, can MS be responsible for SI joint pain, sciatica, and low back pain? If so, are those treated any differently than they are for a person who does not have MS? Nothing has responded significantly to traditional therapies (PT, exercises, meds, adaptations) and in fact it's gotten worse' starting as what felt like tightness/discomfort in my SI joint, then pain in the SI joint area, then pain down my leg (sciatica), than low back pain on both sides.
I totally don't want to presume that I have MS but if I can figure out a way to address this pain by taking the approach that is rooted in MS, that will dramatically improve my overall quality of life. FYI my leg on that side has been weak, "heavy,"' tingly, and in pain from very tight muscles/tendons since just before this all started, about a year ago.
Hi again, Buela,
I'm so sorry that you're having so many painful problems with no real answers! I've been able to adapt to and alleviate innumerable MS weirdnesses and difficulties, but I am not good with pain at all.I did want to mention that, even if you ultimately are diagnosed with MS, it does NOT mean that your nerve pain is necessarily caused by MS.
In my case, my peripheral nerves are demyelinating like my central nervous system (HNPP), and I'm currently dealing with a sciatic nerve entrapment (as noted by a Physical Therapist) in my totally non-MS leg, causing burning pain right down through the sciatic nerve on the outside of my right calf - only when I walk distances. The positional nature is another reason that it's unlikely to be some sort of MS brain lesion or even HNPP - the damn thing is being squeezed somehow when I move it certain ways.
I was told it's probably piriformis syndrome (see Wikipedia for a quick definition).http://en.wikipedia.org/wiki/Piriformis_syndrome
I guess that my MS gait could definitely be contributing to it, but I doubt that MS could be a direct cause of it. And here's what NINDS says about it:http://www.ninds.nih.gov/disorders/piri ... ndrome.htm
Also, you should check this link about HNPP that shows a great pic of the many peripheral nerves in the body, as opposed to the small amount of nerves that make up the central nervous system. And don't forget that there are approximately a gazillion other medical conditions that can cause damage to all those peripheral nerves.http://en.wikipedia.org/wiki/Hereditary ... sure_palsy
My mantra: It's not always MS...it's not always MS...it's not always MS...it's not always MS...