This Is MS Multiple Sclerosis Community: Knowledge & Support

OMG I still didn`t get this right yet!! So sorry Jimmylegs!!!!! Thank you for trying to steer me onto the right path again........I am going to repeat Magnesium Glycinate to myself 100 times today................

you'll get it all sorted out, i'm sure!

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Thank you for all the replies, I am anxious to get to know everyone and learn about CCSVI. I don't usually keep up with MS stuff for some reason. I am worried a little about the pain, I mean you can;t even touch any area around my breasts or under them it is sore! I had a mamogram and it came out fine. SO back to sqaure one. I had low potassium, magnsium and low vit D and very high d-dimers. The day I saw my doc I seemed to hurt in random places all over, today it's back around under my breasts and underarms etc... I do have an odd patch on my thigh where it hurt just to touch the skin and under it it feels like someone punched me. I mean what the heck?


I see my doc in the AM, I'll keep you posted.


Again thanks for all your replies!

again, probably magnesium would be a good go-to, ensure it's optimal and then see if you still hurt. cheers!

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

After my appt tommorow I will pick upsome suppliments. Is there a brand that you can recommend? I have a whole foods near me that sells brands that are supposed to be better.

Also as for vit D, I know the sun is the best source, but what about in pill forum? I seen D, D3 and think there are others. What kind should I take?

awesome. right now my before meals magnesium glycinate brand is kirkman http://www.kirkmanlabs.com/

i have used new roots magnesium bisglycinate but would advise caution with that, as mentioned above http://www.newrootsherbal.com/

my bottle of bedtime mag is magnesium citrate by natural factors http://naturalfactors.com/

as for D, vitamin D3 is the best form. you can ensure optimal absorption by making sure your zinc level is in the high teens ie around 18 umol/L.

when you are taking D3, it's a good idea to also take not only magnesium and zinc but of course, calcium.

aim for a ballpark intake of 4000IU vit d3/day, 1000mg calcium, say 500-600mg magnesium, and 25-50mg zinc. hopefully all with bloodwork to monitor efficacy

hope you can find everything all right!

jimmylegs

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

update @ lovebug: so here's the TMI on the past week's magnesium experiment. yesterday i officially got the supplementary intake up to 600mg and this morning i got the first real evidence of let's just say, 'GI loosening'. unfortunately i have not been dividing the doses very well since i work outside with kids (not taking ANY chances!) so i take most of it in the late afternoon and evening.

one nice effect of forcing magnesium back into my regimen properly, is the calming of the jimmylegs. they had definitely taken a recent turn for the frisky. it's amusing trying to stifle or cover involuntary movement while looking totally nonchalant hehe

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Gosh I am still trying to find who sells Magnesium Glycinate in a store in Calgary, Alberta. So far it is a no go..........

i googled and came up with better4life.ca

403-237-2353
518-922 5 Avenue Sw
Calgary, AB T2P 5R4

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Thank you Jimmylegs once again!!!!!!!!!!! I did find a health food store in s.e. calgary today called Morning Sun Health foods. They originally were trying to sell me Bisglycinate along with about another 30 supplements for MS symptoms. I said NOOOOOOOOOOOOOOOO. I want Magnesium Glycinate only!!!!!!!!!!! Anyways I found the proper one and walked away a happy MS patient.......
Gosh I hope this helps somewhat with nerve pain. I started today with 200mg. and than said a silent prayer.....................

glad you stuck to your guns! what else were they trying to sell you, just out of curiosity?

i hope you will try stepping it up a bit each day, and let us know how you get on 600 should be the goal but 400 works too, especially if your diet is magnesium-rich.

ttfn!

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

The sales lady in the store made me dizzy with all of the supplements she was trying to unload on me! And all I wanted was Magnesium Glycinate!! I can remember one product with Turmeric in it, Omega 3 pills ( I already take Omega 3-6-9) but the sales clerk said that was not good and unfortunately I cannot remember the rest. But looking back if all of these products that they were trying to unload on me would help even just a little for my nerve pain (allodynia) I would have GLADLY forked over the cash. I thought at the time that taking these different supplementsl at the same time would not be a good idea for now. I think that one at a time is the best. I am currently taking Lyrica, Amytriptyline, vitm. D. and Magnesium Glycinate.

wow sounds annoying. she probably didn't like omega 3-6-9 because it's adding omega 6 inputs and societally we're already overloaded on that one.

turmeric yeah, it's antioxidant but you can do it in food (if you like curry!)

how much vitd3 are you taking daily? do you get tested, and if so, how are your levels responding to your regimen?

fyi i went looking for possible nutrient depletion impacts of lyrica and amitriptyline:

from http://www.organicfoodee.com/vms/vitaminb2/
"The conversion of riboflavin into its active coenzyme form is inhibited by thyroid and adrenal insufficiency; psychotropic drugs such as amitriptyline, chemotherapeutic drugs, and anti-malarial drugs."

Cardiac sensitivity to the inhibitory effects of chlorpromazine, imipramine and amitriptyline upon formation of flavins
sciencedirect.com/science/article/pii/0006295282906323

Chlorpromazine, imipramine and amitriptyline, drugs structurally related to riboflavin, each inhibited the formation in vivo of flavin adenine dinucleotide (FAD) from riboflavin in rat heart at 2-5 mg/kg body weight, doses comparable on a weight basis to those used clinically. All three drugs inhibited FAD formation in heart within 5 hr after a single dose of 25 mg/kg. Chlorpromazine under these conditions also inhibited FAD formation in liver, cerebrum and cerebellum. A series of psychoactive agents structurally unrelated to riboflavin did not inhibit flavin formation in the organs tested. These findings indicate that the inhibitory effects of the drugs studied have organ specificity with respect to FAD formation

Fibromyalgia/fibro pain
http://en.allexperts.com/q/Fibromyalgia ... pain-1.htm

"Anyway, I saw my MD 2 weeks ago, she started me on Lyrica at a very low dose. Since then I have increased muscle pain, and unsure what to do. My dr really does not have a lot of experience with Fibro. I want to call for her to increase my dosage, but I'm also wondering if the Lyrica could be to blame for my increased pain! Prior to going on Lyrica I did not have this level of pain."

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

I am currently on 4000 mg. vit.d./day and the dr. has me on B-12 injections every 2 weeks for 5 months to see if that will help also. I have to date only had 3 inj. You know I don`t actually know the numbers for my vit. D levels since I am only told by my dr. that it is `o.k`. But perhaps I shall start asking! What is the correct rate? The dr. also wanted me to take Neurontin (Gabapentin) and Lyrica (pregabelin) together. I also take Avonex. I feel like a walking pharmaceutical company. I take Omega 3-6-9 3 jell pills /day and today I took 400 mg. Magnesium Glycinate. I am also on 100 mg. Amytriptlyine. Any other suggestions `Jimmylegs` ? I am all ears........................I have to write this stuff down on a paper everyday just to keep track................

hey there, definitely ask re the d3 level. you want to be at least 125-150 nmol/L, no higher than 250. you could be in the 70s and most docs would still tell you you're 'ok'!

please don't take d3 without ensuring proper intakes of calcium, magnesium (which you're now doing, yay!) and zinc.

an abstract to read:
Release of glutamate and GABA in the hippocampus under zinc deficiency
http://www.ncbi.nlm.nih.gov/pubmed/12704815

"Gamma aminobutyric acid (GABA) concentration in the hippocampal extracellular fluid during stimulation with high K(+) was increased in the control rats, but not in the zinc-deficient rats."

also of possible interest:
Susceptibility to kainate-induced seizures under dietary zinc deficiency
http://onlinelibrary.wiley.com/doi/10.1 ... 803.x/full

"The present results demonstrate an enhanced release of glutamate associated with a decrease in GABA concentrations as a possible mechanism for the increased seizure susceptibility under zinc deficiency."

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com