Wow, my experience with my neurologists have been almost identical. I had one neuro make sarcastic comments in reference to my internet research - in defense of my refusal to take CRABs. I even had a neuro get up in the middle of a discussion on the CRABs and walk out of the room. I'm on my third neurologist now and was only diagnosed last June.
I've had two MRIs since my diagnosis - both showing multiple active lesions in the brain and cervical spine. After my second MRI, I was quite scared too. I went to see my neuro and his assistant essentially told me that my prognosis is not good, that I will most likely be paralyzed from the neck down. Well, needless to say, that was quite effective - I was scared enough to listen. This event was in December 2004. His recommendation - Tysabri. I agreed - doubting my decision to take LDN. I even asked the assistant, "Are you sure this is safe - would you give this to your family member?" He replied, "Yes, I would give it to my sister."
I left expecting to hear from him as to when to begin treatment - at the time Tysabri had to be cleared through the insurance company. I didn't hear from him - but knew I had to do something
-so I got my LDN and started it. I never did hear from the assistant. I received an email alert that Tysabri had been recalled.
I've been on LDN since December 2004 and have not had a relapse since. And I'm still walking.
I feel the same way - the doctors are depressing and scary. The LDN hasn't helped reverse any of the previous damage, but I think it has prevented further damage. If LDN is working for you, stick with it!
Finally, I recommend The Anatomy of Hope - How People Prevail In The Face Of Illness
by Jerome Groopman, MD. This book really gives you insight into hope, but also doctors. Another good book is [ i]Life on Cripple Creek.[/i] A positive, humorous look at life with MS.
I hope you do something - and I hope that something is to have faith in yourself and your decisions and stay with the LDN as long as it continues to work for you.[/b]