I hope you see some improvement soon:)
How does one truly know if they have lyme or not? I once tested positive for lyme but have since been twice negative.
Do you have to have had a memorable incident of being bitten by a tick?
I used to spend a lot of my childhood in America but mainly Florida.....Is Lyme disease something you can pick up from Florida?
Hi LR There are a growing number of people in the UK being diagnosed with Chronic Lyme Disease contracted both in UK and in US as well as other parts of the World. There is a huge medical controversy over chronic lyme Disease but many patients suffer with MS type symptoms which make it difficult to know if it could be Chronic lyme Disease. Sadly many are not always aware of the poppy seed sized tick that bit them and many do not get or see the Bulls eye rash. It can sometimes be years before symptoms become troublesome. Blood tests can miss up to 50% of cases.
Currently most mainstream doctors follow the IDSA restricted guidelines however there is much science that supports the view of ILADS. Many hundreds of patients here in the UK are improving on long term antibiotics, including myself.
I am not sure about adding url's so I would recommend that you Google Lyme Disease Action, join chat line Eurolyme and you will find much information worth reading. There are one or two private doctors in the UK who would assess you to see if your MS could in fact be due to Lyme Disease and with appropriate treatment make some significant improvements.
Good luck in finding something that helps you.