MS'ers who have had hip replacement surgery?

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MS'ers who have had hip replacement surgery?

Postby reece » Mon Jan 23, 2012 2:20 pm

Hi, I am a 44 year old male who has been diagnosed by 5 orthpedic surgeons as a patient needing a total hip replacement. I have had RRMS for about 20 years now and was wondering what I should expect, be aware of, etc. if I decide to proceed.

Thanks for any input here!
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Re: MS'ers who have had hip replacement surgery?

Postby drsclafani » Fri Feb 03, 2012 4:18 pm

so sorry for you difficulties.

why would you need a total hip replacement at age 44. Did you have an injury? Do you have rheumatoid arthritis? Do you have asceptic necrosis of the hip from steroid treatments for MS exacerbations??
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Re: MS'ers who have had hip replacement surgery?

Postby reece » Fri Feb 03, 2012 4:44 pm

I have a torn labrum, socket bone fragments, FAI, and thin cartiledge. All this has induced osteoathritis near the injury.
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Re: MS'ers who have had hip replacement surgery?

Postby drsclafani » Fri Feb 03, 2012 5:22 pm

I do not have MS so i cannot answer your questions about preparation as a PwMS.

I do have an interest in osteonecrosis related to steroid treatment causing avascular necrosis. How often have you been treated with steroids?

are there any other patients who have required total hip replacement or been advised to undergo this procedure?
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Re: MS'ers who have had hip replacement surgery?

Postby reece » Tue Feb 07, 2012 10:59 am

Dr. Sclafani -

I don't believe my hips issues are steroid related. Over the course of 20 years, I have probably only done 3 or 4 flare-up cycles. I more attribute the injuries and related athritis to ms-induced hip muscle weakness combined with being physically active.
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Re: MS'ers who have had hip replacement surgery?

Postby drsclafani » Tue Feb 07, 2012 12:01 pm

drsclafani wrote:I do not have MS so i cannot answer your questions about preparation as a PwMS.

I do have an interest in osteonecrosis related to steroid treatment causing avascular necrosis. How often have you been treated with steroids?

are there any other patients who have required total hip replacement or been advised to undergo this procedure?

Thanks for sharing. Good luck with surgery
Salvatore JA Sclafani MD
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Re: MS'ers who have had hip replacement surgery?

Postby KyleW » Wed Feb 08, 2012 8:53 am

I'm a 52 year old male. I was dx with SPMS this past October. 3 years ago I was unaware of my MS, but did have my left hip replaced. My problem was bone on bone osteoarthritis. In my case it was the bone conserving hip resurfacing procedure.

There were no complications related to my MS. Even though I was unaware at the time that I had MS, apparently I have had it for at least 20 years.

Based on my experience, short of making sure everyone knows what drugs you are taking, there is no MS related reason not to proceed.

Before my hip surgery I couldn't walk10 yards without pain. Now, given that my my hip is made of chromium, I have no pain :) My advice would be to proceed!

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Re: MS'ers who have had hip replacement surgery?

Postby AllyB » Wed May 09, 2012 12:25 pm

To Drs Sclafani
I have had MS since 1999, have had around 10 courses of high dose iv steroids (1000mg of solumedrol per day for 5 days per course), been on Avonex for 6 years and have stage 2 osteo necrosis of the left hip, probably from steroids - I have been offered the surgery where they drill little holes into the head of the femur to encourage revascularization (forget what it is called!), but I am still thinking about it.
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Re: MS'ers who have had hip replacement surgery?

Postby panda11 » Mon Dec 10, 2012 2:34 pm

Hello
I had a THA left hip (almost 15 months post op). The first couple of months I was doing very well. However, for the last, what feels like eternity, 10 plus months, I have had weight bearing pain- mostly on crutches now...'been shuttled' from test to test... now to get another 3 phase bone scan this month (as the first one suggested 'loosening'), ... be on the safe side, 2nd opinion doc said 'it's a more accurate read 15 months post op...
history: I have M.S, been on Avonex for 10 years. I am 48 year old woman. Normally very active- mural painter/textile/community artist. In 1996 I had AVN/core decompression surgery.
Question: is there any connection between M.S, THA, the polyethylane acet. component in my body and the chance that osteolysis is happening...?? I am doing research to see what might be possibly going on... at this point no specific components in me have been recalled, however what about the polyethylane... does my autoimmune challenge with M.S create a possibility that my body is reacting?!
The initial surgeon wants to go in there and see what's going on; the 2nd opin. doc suggests I wait, as I'm doing...
thoughts?
thanks
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Re: MS'ers who have had hip replacement surgery?

Postby broomdancer » Tue Dec 11, 2012 12:00 pm

Dear Dr Sclafani: My husband's first serious MS flare up occured in 2003. He started falling down at work, I took him to the Emergerency room where our GP happened to be on call. Our Dr first thought that might be Cancer in the spine. Immediately he was given an MRI where MS was discovered. He was put on a 2-4 week steroid regiment. (can't remember exactly the duration). In the past year my husband has discovered that he needs 2 hip replacements (one worse then the other). He has been wall walking since then and very slowly. Our dilema is, the surgeon doesnot want to do the surgery until he can't stand the pain any longer. His fear is that it could ascerbate the MS ( dx'd PPMS). Are you aware of this happening? I have previously posted my concerns and unfortunately know one has replied to me ...He had the liberation treatment June 2010 by Dr Simca in Poland where his walking really improved for about 6 weeks. There have been 2 scans done within the first yr of treatment, in Barrie, On & the technician said his neck was fine. Dr Simca stated that he believed his Azorles (forgot name) was okay although it was mangled ( I believe that was how it was phrased)...My husband (age 61) thinks, there may well be arthritis involved but how would we know this?..I would really appreciate any input or help that you could provide I am at my wit's end on what course of action we need to take.. Thank you...Cheers Diana
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Re: MS'ers who have had hip replacement surgery?

Postby cooper08 » Sat Nov 30, 2013 8:34 am

I am a 53 year old who had hip replacement surgery in May 2013. I had so much pain all over my right leg. Nothing I did would help it (treatment, medication). I am now completely out of pain although it stole my mobility which I had with a rollator before surgery. I have had MS for 18 years. I had no idea that recovery would be so difficult. I was in the hospital 3 weeks. When I got home, I couldn't go 5 minutes without having to go to the bathroom. That has cleared up, but the mobility issue is distressing, as I live alone. I don't know what will happen in the future, if I will walk again. If you can stand the pain, don't do it. No one told me what I was in for. I am trying to do everything I can to walk again, and I won't give up as I used to be very active.
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