This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi, I am a 44 year old male who has been diagnosed by 5 orthpedic surgeons as a patient needing a total hip replacement. I have had RRMS for about 20 years now and was wondering what I should expect, be aware of, etc. if I decide to proceed.

Thanks for any input here!

so sorry for you difficulties.

why would you need a total hip replacement at age 44. Did you have an injury? Do you have rheumatoid arthritis? Do you have asceptic necrosis of the hip from steroid treatments for MS exacerbations??

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Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com

I have a torn labrum, socket bone fragments, FAI, and thin cartiledge. All this has induced osteoathritis near the injury.

I do not have MS so i cannot answer your questions about preparation as a PwMS.

I do have an interest in osteonecrosis related to steroid treatment causing avascular necrosis. How often have you been treated with steroids?

are there any other patients who have required total hip replacement or been advised to undergo this procedure?

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Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com

Dr. Sclafani -

I don't believe my hips issues are steroid related. Over the course of 20 years, I have probably only done 3 or 4 flare-up cycles. I more attribute the injuries and related athritis to ms-induced hip muscle weakness combined with being physically active.

Thanks for sharing. Good luck with surgery

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Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com

I'm a 52 year old male. I was dx with SPMS this past October. 3 years ago I was unaware of my MS, but did have my left hip replaced. My problem was bone on bone osteoarthritis. In my case it was the bone conserving hip resurfacing procedure.

There were no complications related to my MS. Even though I was unaware at the time that I had MS, apparently I have had it for at least 20 years.

Based on my experience, short of making sure everyone knows what drugs you are taking, there is no MS related reason not to proceed.

Before my hip surgery I couldn't walk10 yards without pain. Now, given that my my hip is made of chromium, I have no pain My advice would be to proceed!

Kyle

To Drs Sclafani
I have had MS since 1999, have had around 10 courses of high dose iv steroids (1000mg of solumedrol per day for 5 days per course), been on Avonex for 6 years and have stage 2 osteo necrosis of the left hip, probably from steroids - I have been offered the surgery where they drill little holes into the head of the femur to encourage revascularization (forget what it is called!), but I am still thinking about it.
Regards

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Al

Hello
I had a THA left hip (almost 15 months post op). The first couple of months I was doing very well. However, for the last, what feels like eternity, 10 plus months, I have had weight bearing pain- mostly on crutches now...'been shuttled' from test to test... now to get another 3 phase bone scan this month (as the first one suggested 'loosening'), ... be on the safe side, 2nd opinion doc said 'it's a more accurate read 15 months post op...
history: I have M.S, been on Avonex for 10 years. I am 48 year old woman. Normally very active- mural painter/textile/community artist. In 1996 I had AVN/core decompression surgery.
Question: is there any connection between M.S, THA, the polyethylane acet. component in my body and the chance that osteolysis is happening...?? I am doing research to see what might be possibly going on... at this point no specific components in me have been recalled, however what about the polyethylane... does my autoimmune challenge with M.S create a possibility that my body is reacting?!
The initial surgeon wants to go in there and see what's going on; the 2nd opin. doc suggests I wait, as I'm doing...
thoughts?
thanks

Dear Dr Sclafani: My husband's first serious MS flare up occured in 2003. He started falling down at work, I took him to the Emergerency room where our GP happened to be on call. Our Dr first thought that might be Cancer in the spine. Immediately he was given an MRI where MS was discovered. He was put on a 2-4 week steroid regiment. (can't remember exactly the duration). In the past year my husband has discovered that he needs 2 hip replacements (one worse then the other). He has been wall walking since then and very slowly. Our dilema is, the surgeon doesnot want to do the surgery until he can't stand the pain any longer. His fear is that it could ascerbate the MS ( dx'd PPMS). Are you aware of this happening? I have previously posted my concerns and unfortunately know one has replied to me ...He had the liberation treatment June 2010 by Dr Simca in Poland where his walking really improved for about 6 weeks. There have been 2 scans done within the first yr of treatment, in Barrie, On & the technician said his neck was fine. Dr Simca stated that he believed his Azorles (forgot name) was okay although it was mangled ( I believe that was how it was phrased)...My husband (age 61) thinks, there may well be arthritis involved but how would we know this?..I would really appreciate any input or help that you could provide I am at my wit's end on what course of action we need to take.. Thank you...Cheers Diana