Hey there, Robin. You always did
have impeccable timing. How did you know I'd be popping on here this morning as luck would have it?
Just yesterday I was thinking the same thing as you and was almost going to post, but then didn't. I saw you had posted a few times and was about to do the same. As is also your norm, you had already said what I would have said anyway.
I'm still involved in MS. As a matter of fact, aside from already having one co-worker who was diagnosed with MS back in 2004, another co-worker friend of mine has also just been diagnosed over these past holidays!
I am still in contact with the NMSS and chatted with Vanderbilt for a while (a few months) regarding MS, their theories, research, etc.
The latest incidence for me being: ta da! They are finally
finding what I kept spouting over a year ago! The fact that Keppra (levetiracetam), due to the fact that it is a nootropic, and is neuroprotective, etc. does improve cognition (not to mention tremor). Of course, you know me...............I said "Doggone it, guys! I TOLD you so!!!"
The NMSS wrote to me and told me they were glad to see I was still busy with all this.
Robin...........by the way..........it's GREAT to hear you are still doing so well, also!
If anybody is interested, I'll post the most recent findings with regard to levetiracetam in another thread. I still keep hounding the same folks in the research world to continue to study desipramine and levetiracetam. Vanderbilt itself does have a clinical trial starting up now on levetiracetam. At least they know I'm not totally out of my mind now, and they do listen and talk to me. That's a small step, I suppose.