Weird kind of Numbness

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Weird kind of Numbness

Postby IceSkate » Mon Feb 06, 2012 10:21 pm

What do you call that feeling that is like numbness, but where it feels like your skin has cling-film around it... it's not like it's asleep or tingling... it's like the skin is 50% less sensitive...

I'm just wondering if there's an official term for this kind of numbness that is so hard to describe.
IceSkate
Getting to Know You...
 
Posts: 16
Joined: Tue Nov 01, 2011 9:42 pm

Advertisement

Re: Weird kind of Numbness

Postby Alexandra » Tue Feb 07, 2012 10:58 am

Hi there,

I had the exactly same sensation on my legs 3 weeks ago. My neuro said it is called paresthesia and he wasn't sure if it was due to an attack or not. I am scheduled for an MRI to figure that out.

Do you have this sensation all the time or it comes and goes?
User avatar
Alexandra
Family Member
 
Posts: 46
Joined: Fri Feb 05, 2010 4:00 pm

Re: Weird kind of Numbness

Postby LR1234 » Tue Feb 07, 2012 1:01 pm

I call that loss of sensation when explaining it.
Numbness i describe as like a local anastetic
LR1234
Family Elder
 
Posts: 1501
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Re: Weird kind of Numbness

Postby MarkLavelle » Tue Feb 07, 2012 3:09 pm

IceSkate wrote:What do you call that feeling that is like numbness, but where it feels like your skin has cling-film around it... it's not like it's asleep or tingling... it's like the skin is 50% less sensitive...

I'm just wondering if there's an official term for this kind of numbness that is so hard to describe.

That's similar to how I describe my paresthesia (the official word). Being an engineer I always think of it as a signal-to-noise ratio problem, like hiss on an old cassette tape. The music is still there, but the hiss makes it hard to hear the quieter parts. So if the 'hiss' volume level is 50%, any quieter/weaker sensation is either distorted or not perceived at all.

I don't call it numbness or "pins & needles" but I am constantly (24/7) aware of the 'noise' in my skin nerves...

"Paresthesia" is a pretty general term, by the way (http://www.iasp-pain.org/AM/Template.cfm?Section=Pain_Defi...isplay.cfm&ContentID=1728). I don't think there's any specific term for the specific varieties we experience.

RRMS dx 3/3/11; Copaxone since 12/1/11
MarkLavelle
Family Elder
 
Posts: 178
Joined: Sat Dec 17, 2011 9:08 pm
Location: San Francisco Bay area

Re: Weird kind of Numbness

Postby IceSkate » Tue Feb 07, 2012 5:21 pm

>>"Do you have this sensation all the time or it comes and goes?"<<

I had it for 2 and a half months over my entire body. During that time I could not taste anything (ageusia).

I've had lots of symptoms over the past year and a half and been tested for various things. Right now my doctor is testing for porphyria and then an MRI for MS. I don't think it's porphyria.
IceSkate
Getting to Know You...
 
Posts: 16
Joined: Tue Nov 01, 2011 9:42 pm

Re: Weird kind of Numbness

Postby SaintLouis » Tue Feb 07, 2012 8:20 pm

IceSkate, what tests is your doctor running to rule out porphyria?
User avatar
SaintLouis
Family Elder
 
Posts: 153
Joined: Sun Dec 13, 2009 4:00 pm

Re: Weird kind of Numbness

Postby IceSkate » Tue Feb 07, 2012 10:07 pm

Vitamin B12 (came back normal)
B1 (Thiamin)
Vitamin B6, P/S
Copper, Serum
Heavy Metals Scrn Bld (I don't know that Scrn Bld means)
Ceruloplasim

and a 24 hour Urine test for Porphyrins.

I had never heard of porphyria before, but he just kind of quickly suggested it.

I'm just really worried right now because I have no idea what's wrong with me or what it will mean for my future... I wish these tests would just hurry up and get back to me... so confused about everything right now.
IceSkate
Getting to Know You...
 
Posts: 16
Joined: Tue Nov 01, 2011 9:42 pm

Re: Weird kind of Numbness

Postby SaintLouis » Wed Feb 08, 2012 2:45 pm

Interesting, thanks. I do understand your frustration, I've got a ton of symptoms and no diagnosis myself. This has been going on a long time for me.

I hope your doctor is able to find something so you will know what it is you're dealing with. It's hard to make a plan if you don't.
Hang in there!
User avatar
SaintLouis
Family Elder
 
Posts: 153
Joined: Sun Dec 13, 2009 4:00 pm

Re: Weird kind of Numbness

Postby Sarahebeth » Thu Feb 09, 2012 10:36 am

LR1234 wrote:I call that loss of sensation when explaining it.
Numbness i describe as like a local anastetic


That's how I describe mine, too. Like the way your face feels if you scratch it after it being numbed at the dentist.
Sarahebeth
Newbie
 
Posts: 7
Joined: Thu Feb 02, 2012 12:34 pm


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users